Born Too Soon: Global Action Report on Preterm Birth

The World Health Organization recently released, Born Too Soon: A Global Action Report on Preterm Birth. The report features the first-ever estimates of preterm birth rates by country and is authored by a broad group of 45 international multi-disciplinary experts from 11 countries, with almost 50 organizations in support. This report is written in support of all families who have been touched by preterm birth. Findings show that rates of preterm births are increasing however premature babies can be saved now with feasible,cost-effective care. An Executive Summary highlights the key findings of the report.

Technology and Interactive Media as Tools in Early Childhood Programs Serving Children from Birth through Age 8

The National Association for the Education of Young Children and the Fred Rogers Center for Early Learning and Children’s Media at Saint Vincent College issued a joint statement on the use of technology and interactive media with young children. The statement is meant to provide research-based guidance to all those who care for young children as they consider if, when and how to use technology and interactive media in early childhood programs (schools, centers, family child care) serving children from birth through age 8. Read the full Statement.

Providing a Primary Care Medical Home for Children and Youth With Cerebral Palsy

The American Academy of Pediatrics released a new clinical report, “Providing a Primary Care Medical Home for Children and Youth With Cerebral Palsy”.

The report reviews the aspects of care specific to cerebral palsy that a medical home should provide beyond the routine health care needed by all children such as diagnosis, planning for interventions, authorizing treatments, and follow-up, and optimizing health and well-being for children with cerebral palsy and their families.

Autism Case Training: A Developmental-Behavioral Pediatics Curriculum

The CDC recently released this American Academy of Pediatrics (AAP)-endorsed curriculum which is designed to educate future pediatricians on identifying, diagnosing, and managing autism spectrum disorders through case-based scenarios. The curriculum is a flexible, interactive learning tool that emphasizes practical skills for patient and parent interaction. The full curriculum and videos are available online

New Report Highlights Importance of Parent-Provider Partnerships for Children with Disabilities

A new clinical report from the American Academy of Pediatrics explores the multi-faceted issues and needs faced by families of children with disabilities such as health care services, social and financial support, care coordination,and transition services–and how these families can best be served.

Parent-Provider-Community Partnerships: Optimizing Outcomes for Children With Disabilities explores the challenges of developing effective community-based systems of care and offers suggestions to pediatricians and policy-makers regarding the development of partnerships among children with disabilities, their families, and health care and other providers to maximize health and well-being of these children and their families.

Recap

So I haven’t been on for a while so let us just recap on how things are going.

There are three parts to the project we need to work out,

One the input ( the actual tracking of the eye)

Two the actual software running on the arduino

Three outputting the data back to the computer

The first part is going well the eye tracking software is semi- useable at this point. There is still some inaccuracy but in good conditions it is good enough to hit a small button. There are a few things holding this back, one the camera is not a in color or a high resolution. The camera is also not mounted onto a pair of glasses as we are planning to this causes it to move in relation to your eyes and then thereby cause shifts on the screen and the nouse not being exactly where you are looking. So these should be easily solved once we mount a good camera in a pair of glasses.

The second part is currently the hardest. We are trying to some how run a majority of the software on the micro-controller, even the it supports the .NET framework used by the software and has expandable memory to fit the software. We still need to cross compile it to work on the arduino this is mainly what I am working on.

The final step is actually outputting to the PC. This is why we are using the Wii remote; for it’s bluetooth capabilities. We need to unsolder the accelerometer and use those inputs once we are done the rest of the software.

-Manbir Gulati

New Clinical Report on Supporting the Health Care Transition from Adolescence to Adulthood in the Medical Home

The new clinical report—Supporting the Health Care Transition from Adolescence to Adulthood in the Medical Home—appears in the July issue of Pediatrics. The report is jointly authored by the American Academy of Pediatrics (AAP), the American Academy of Family Physicians (AAFP), and the American College of Physicians (ACP) and the provides practical, detailed guidance on how to plan and execute better health care transitions for all patients. The report follows an algorithmic format from age 12 through the transfer of care to an adult medical home.

Preparing General Education Teachers to Improve Outcomes for Students With Disabilities

The IDEA stresses the importance of participation of students with disabilities in the general curriculum. (read more about IDEA in the Education Section) and more and more children with disabilities are placed in the general education classroom and are taught by general education teachers. This can be problematic for some teachers who do not feel prepared to teach these children.

The American Association of Colleges for Teacher Education and the National Center on Learning Disabilities recently published a policy brief, "Preparing General Education Teachers to Improve Outcomes for Students With Disabilities" that articulates a vision of effective preparation for general education teachers to improve outcomes for students with disabilities. The brief outlines challenges, promising practices and recommendations to improve the success of children with disabilities.

Toolkit for Parents of Children with Epilepsy

The Epilepsy Foundation released a new publication, Epilepsy and My Child Toolkit: A Resource for Parents with a Newly Diagnosed Child

The Toolkit is designed to be a resource guide and information referral source and includes forms to help parents organize medical and educational information, take notes, and facilitate communication between all parties involved in the child’s care.

United Cerebral Palsy Presents Online Resource for Parents of Young Children with Developmental Delays

MyChildWithoutLimits.org Helps Families Plan, Understand & Act

 

Washington, D.C. (September 23, 2009) - United Cerebral Palsy (UCP) today announced the launch of My Child Without Limits (MyChildWithoutLimits.org), UCP’s pioneering initiative that provides parents of children with disabilities an online resource with critical information that also connects parents to a vital social network of parents of newly diagnosed children ages 0 to 5.

The first realization that your child may face the many challenges and obstacles encountered by those who live with a disability can be a lonely, frightening and confusing time. Many parents who have been assisted by UCP have reported that finding the organization and receiving the information and advice our affiliates provide has been a very significant turning point for them.

My Child Without Limits is a place for parents worried that their child is not developing like other children, to find answers to their questions. It is a place where parents know they are not alone after their child has been diagnosed with a developmental delay or disability. The authoritative site and online community are designed to be resources for families and their caregivers and professionals.

The Web site provides access to accurate, user-friendly and relevant disability-related information, resource guides, and experts on early intervention and family support in three basic areas:

  • Understand – Help families answer the questions: What are Autism Spectrum Disorder, Cerebral Palsy and Down Syndrome?
  • Plan – Provide guidance about where to go for early intervention services, treatments and therapies, assistive technologies, and expert direction and advice.
  • Act – Direct parents and caregivers to where they can explore issues surrounding disability awareness, advocacy and lifespan planning.

The community section of My Child Without Limits also offers a venue for parents to communicate with each other, ask questions of professionals and service providers, and receive support through the critical period of initial diagnosis.

"I can’t think of a better way to reach parents of children with disabilities who are so desperately seeking credible information they can trust," said Stephen Bennett, President & CEO, United Cerebral Palsy, Inc. "My Child Without Limits will be the one-stop shop for parents and professionals, and help children with disabilities start achieving a life without limits at an early age."

For more information, please visit www.MyChildWithoutLimits.org today.

About United Cerebral Palsy

United Cerebral Palsy (UCP) was founded over 60 years ago by parents of children with cerebral palsy. Today UCP is a leading service provider for adults and children with disabilities. UCP’s services reach over 176,000 adults and children every day through a network of over 100 affiliates in the United States, Canada, Scotland and Australia. The UCP National office, located in Washington DC, provides assistance to affiliates through marketing and communication services, programmatic support and an annual conference. UCP National also serves people with disabilities and their families through public policy and advocacy, the development of forward-thinking programs and the Life Without Limits initiative.

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