World CP Day
If Labor Day has come and gone, World Cerebral Palsy Day must be just around the corner.
Join UCP and countless other organizations across the globe in celebration and support of those living with cerebral palsy on World CP Day, October 6.
Over the next month, UCP will be making extensive use of the data, resources and social media tools available at worldcpday.org as part of the international effort to raise awareness about the “millions of reasons to make your voice heard…”
The catchphrase is a reference to the estimated 17 million people with CP worldwide, tens of thousands of whom receive support and care through UCP’s 58 affiliates in the U.S. and Canada.
To learn how you can support this inspirational initiative, visit worldcpday.org and check out the World CP Day Event Guide. Remember to tag @worldcpday and use the hashtags #MillionsOfReasons and #WorldCerebralPalsyDay.
UCP is advocating for HCBS funding
Congress is finalizing top level budget numbers that will give Congressional committees direction on creating the final budget reconciliation package.
The Better Care Better Jobs Act calls for $400 billion for home and community-based services (HCBS) and support for the direct care workforce, though some lawmakers want to cut that funding level by $250 billion.
UCP and our national partners believe strongly that the $400 billion is critical to providing long-overdue and much needed support for home and community-based services, and to help strengthen the nation’s direct service workforce.
To keep up the pressure, UCP National has signed onto a letter with a diverse coalition of groups, including dozens of organizations that advocate for people with disabilities, civil rights, aging issues and consumer organizations to urging Congress and the White to fund the full $400 billion.
If you’d like to support these efforts, please call your Member of Congress at (202) 224-3121 and urge them to retain the $400 billion as part of the upcoming budget reconciliation process.
There is still time to make your voices heard. You can also find your representatives’ contact information here.
Professional Learing Series continues Dec. 6
The second of a continuing series of webinars on research on cerebral palsy was held September 2.
“The evolving impact of genetic findings on the diagnosis and treatment of cerebral palsy” was presented by Dr. Michael Kruer, a pediatric movement disorders neurologist, developmental pediatrician and molecular geneticist.
If you missed it, here’s the link to the video recording of Dr. Kruer’s presentation.
The series is a collaboration between United Cerebral Palsy, Gillette Children’s Specialty Healthcare (UCP of Minnesota) and UCP of Central Arizona.
The next presentations happens December 6 with Dr. Angela Sinner: “Cerebral Palsy: Early Evaluation and Intervention.” (Continuing Education Units (CEUs) will be awarded.) Registration information coming soon.
Thank you for your support.
Armando A. Contreras