UCP Launches Innovative Fundraising Initiative



Shelly DeButts: 202-973-7175, sdebutts@ucp.org

Mobile App, Creative Platform Lets Supporters Donate While They Shop


 Washington, D.C. (November 2, 2015) – United Cerebral Palsy (UCP) announced today the launch of a new fundraising partnership with the CauseNetwork™, rolling out a free, branded online Marketplace and customized Mobile App for UCP affiliates in the U.S.   This partnership capitalizes on consumers’ shift toward “shopping for a cause”. When coupled with the widespread use of mobile devices for online purchases, expected to reach $100 million in 2015, fundraising of this magnitude can help expand the mission of UCP to aid people with a broad range of disabilities and their families.

“In this day and age, an organization like UCP has to be very creative with fundraising,” said Michele Levy, UCP’s Director of Individual Giving. “We know many people support our cause, but we have to give them easy, convenient and smart ways to show that support.”

CauseNetwork will create a customized shopping website for every interested UCP affiliate to enable supporters to make online purchases from over 1,000 retailers, up to 10% of which is donated to UCP. The same ability to shop for their cause is enabled through the UCP customized Mobile App, which also includes messaging for affiliates to stay in touch with their donor-members. The entire platform is provided at no cost to the affiliates.

“We work to give UCP a way to do more for their affiliates, without having to ask donors to spend more. Through our platform, members simply redirect their online shopping through their UCP affiliate’s free, branded website and Mobile App. Now donors can contribute to the UCP mission while getting the same great prices from some of the biggest retail brands: Amazon, Target, WalMart, Best Buy and over 1,000 more,” said Clay Buckley, President of CauseNetwork, Inc.


About United Cerebral Palsy

United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with a network of affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence. For more information, please visit http://www.ucp.org.


About the CauseNetwork, Inc.

CauseNetwork™ is a marketplace for giving. A revolutionary and unique fundraising platform built for the non-profit community that generates tax-free donations to a cause through every purchase from partner retailers. Supporters of the cause simply shop online and a portion of each purchase (at no additional expense to them) is automatically provided to their individual cause. For more information, please visit www.causenetwork.com or contact Mary O’Donnell, Mary@causenetwork.com.

Story Behind Viral Photo Better Than You Think


Dan Garringer_Viral Image

McDonald’s employee Kenny helps Dan Garringer with Meal

Chicago, IL (September 25, 2015) – The full story of the man pictured in a photo that went “viral” this week is even more touching than you might imagine. The snapshot posted to Facebook by a customer showed McDonald’s employee Kenny helping Dan Garringer cut and eat his food. Many news outlets reported that Dan ordered his food then requested some help from Kenny, who promptly closed his till at the busy Union Station restaurant and helped Dan eat his meal. More than 1 million people have liked and shared the photo on social media, with many commenting about Kenny’s compassion and kindness. Kenny was given special recognition by the owner/operator of his McDonald’s franchise.

What many of those commenters don’t realize is that this photo speaks volumes to those who know the story of Dan’s life. Dan has cerebral palsy and has strived his entire life to live as independently as possible as a participating and valued member of his community.

“People with disabilities are just like everyone else.  We love life and being part of our community.  We go to restaurants, stores, the movies and coffee shops and take Metra and public transportation to be able to experience life as everyone else does,” Dan said. “I know that Kenny is getting all of the credit, but, in my mind, he is representing all of the employees at the Union Station McDonald’s. They are wonderful, caring people who make me feel that I am just like everyone else, and they do not treat me like I am a person with a disability…they treat me like I am just Dan, someone that loves McDonald’s fries.”

In 1993, Dan and his wife Clarina – who passed away last year – moved in a group home where UCP Seguin of Greater Chicago can provide the support and services he needs. UCP Seguin is an affiliate of United Cerebral Palsy, a nonprofit organization for people with disabilities.

Dan spent his childhood with his family but moved into a nursing home as an adult, where he met and married his wife. For years he was told he was “too handicapped” to work. But after he connected with UCP Seguin, he worked with a case worker to pursue a writing career. For more than a decade, he wrote a column for his local newspaper Suburban Life called “The View from Here.” Using just a thumb and forefinger on one hand, Dan wrote about human potential and advocated for people with disabilities to be fully included in life – concepts neatly captured in this one image.

“Dan often wrote about experiences very much like this…and many times the opposite of this, as he was faced with discrimination, insults, and worse,” said Jim Haptonstahl, Executive Vice President of UCP Seguin “He has been overwhelmed by the reaction to this story. But he’s good with it, if it promotes greater acceptance and inclusion of people with disabilities in society.”

United Cerebral Palsy and its affiliates such as UCP Seguin advocate for that greater acceptance and inclusion, providing the services needed to ensure that people like Dan have the care, education, employment, housing and other opportunities they need.

“Every one of us has certain challenges,” said Jim. “Dan’s challenges mean he sometimes needs a little help from his fellow community members. Kenny gets that. And, that’s cool.”

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About UCP Seguin of Greater Chicago

Seguin of Greater Chicago is a 501(c)(3) nonprofit human services agency dedicated to enriching the lives of people with disabilities. Providing programs and services from birth to old age, UCP Seguin helps children and adults with disabilities achieve their potential, advance their independence and act as full members of the community. Its programs include innovative training and education, family support, employment and life-skills training, residential services, and foster care. For more information, visit www.ucpseguin.org.


Innovators with Disabilities to Pitch to Major Corporations

UCP’s Life Labs Holds Innovation Lab at USBLN National Conference


Washington, D.C. (September, 21, 2015) – United Cerebral Palsy has partnered with USBLN, a national nonprofit that helps businesses drive performance by leveraging disability inclusion, to host an Innovation Lab during USBLN’s 18th Annual National Conference & Biz2Biz Expo in Austin, TX at the end of September.

Innovation Lab, part of UCP’s Life Labs initiative. brings together innovators from all walks of life to compete on teams to dream up the next big idea for people with disabilities. Using human-centered principles of Universal Design, the teams work with mentors and facilitators to tackle problems ranging from mobility to communication in an effort to help improve the every day lives of people with disabilities.

At the conference, Innovation Lab teams will consist of participants of the Career Link Mentoring Program. The program is a collaboration of USBLN and Cornell University’s Employment and Disability Institute, which provides a 6-month career mentoring opportunity to college students and recent graduates with disabilities through linkages to business professionals from USBLN member companies.

“Rather than continuing to retrofit our world to accommodate people with disabilities, there’s no reason why we can’t encourage future designs to work for people of all abilities,” said Gabriel Forsythe Y Korzeniewicz, Life Labs Program Manager. “Past Innovation Lab events have included people with and without disabilities – from students to engineers, to physical therapists and people from a variety of backgrounds. We’re excited that this will be our first Lab in which all of the competitors have disabilities. We’re interested to see what kinds of unique ideas will come from this group.”

From September 27-29 the Innovation Lab teams will compete for one of two opportunities to pitch their ideas “Shark Tank”-style to major corporate players such as IBM, Sprint, Verizon, 3M and Mitsubishi – all part of USBLN’s membership of 5000 of the top companies in America. On September 30, each team’s idea will on display at the Bizt2iz Expo so conference attendees can vote on which two ideas to elevate to the level of a pitch to potential investors.

UCP Receives Motorola Solutions Foundation Innovation Generation Grant

United Cerebral Palsy has received a grant for $20,000 as part of the “Innovation Generation Grant” program from the Motorola Solutions Foundation, the charitable arm of Motorola Solutions, Inc. Through the grant, UCP’s Life Labs initiative will distribute universal design curriculum modules through iTunes U and offer an immersive two-day design challenge, called an Innovation Lab, to engage students across disciplines in human centered design concepts.

Life Labs Logo

The Innovation Generation program awards organizations such as UCP that foster and support science, technology, engineering and math (STEM) initiatives for teachers and U.S. preschool through university students – especially girls and underrepresented minorities, such as people with disabilities.

“It’s amazing to watch people who participate in an Innovation Lab leave with a greater understanding of the challenges that people with disabilities face and a new confidence that they can participate in solving some of those challenges,” said Josef Scarantino, Acting Director of UCP’s Life Labs. “This program has the power to change career trajectories and open up a new worlds of creativity and innovation.”

Innovation Lab HeaderAfter several successful Innovation Lab events in 2014 and 2015, UCP’s Life Labs shaped the Innovation Lab into a curriculum, which can easily be adapted to any school degree program. Utilizing Apple’s iTunes U education content platform, UCP’s Life Labs plans to build a large national presence of students and open the curriculum to outside academic and industry collaboration. The curriculum and Innovation Lab events will be made available to UCP’s network of eighty affiliates through a toolkit that combines all the necessary resources.

The Motorola Solutions Foundation grant program overall will impact about 900,000 students and teachers, each receiving an average of 100 programming hours from our partner non-profit organizations and institutions. Programs will support special populations including girls and women, underrepresented minorities, the lesbian, gay, bisexual and transgender community, people with disabilities and the military.

“The Motorola Solutions Foundation created the Innovation Generation Grant program eight years ago to support educational experiences that spark students to turn their dreams into the innovations that will shape our society’s future,” said Matt Blakely, director of the Motorola Solutions Foundation. “Organizations like UCP are teaching tomorrow’s leaders that careers in engineering and technology are not only fun, but also within their reach.”

For additional information on the Motorola Solutions Foundation grants programs, visit: http://responsibility.motorolasolutions.com/index.php/solutions-for-community/ and for more information on UCP please visit www.ucp.org


About Motorola Solutions Foundation

The Motorola Solutions Foundation is the charitable and philanthropic arm of Motorola Solutions. With employees located around the globe, Motorola Solutions seeks to benefit the communities where it operates. The company achieves this by making strategic grants, forging strong community partnerships and fostering innovation. The Motorola Solutions Foundation focuses its funding on public safety, disaster relief, employee programs and education, especially science, technology, engineering and math programming. For more information on Motorola Solutions Corporate and Foundation giving, visit our website: www.motorolasolutions.com/giving.



UCP Releases Case for Inclusion Rankings and Report

Arizona, Maryland, Missouri, New York & Hawaii Top 2015 List


Washington, D.C. (July 16, 2014) – United Cerebral Palsy (UCP) released the 2015 Case for Inclusion today, an annual report and interactive website used to track state-by-state community living standards for Americans living with intellectual and developmental disabilities (ID/DD).

The Case for Inclusion examines data and outcomes for all 50 states and the District of Columbia (DC), ranking each on a set of key indicators, including how people with disabilities live and participate in their communities, if they are satisfied with their lives, and how easily the services and supports they need are accessed. By taking these factors into account, UCP is able to publish this comprehensive analysis of each state’s progress or failures in providing critical services to individuals living with disabilities.

In addition to rankings, the report digs deeper into two critical issues facing people with disabilities and their families: waiting lists for services and support and transitioning from high school into an adult life in the community. Two case studies examine how states are approaching those issues.

Since 2006, the rankings have enabled families, advocates, the media and policymakers to measure each state’s progress or lack of improvement and gain insight into how the highest-ranking states are achieving their success. To enhance the usability of the report, UCP publishes tables of the data from which the report was compiled on an interactive website where visitors can compare and contrast results among selected states.

“Ultimately, the goal of all of this is to promote inclusion and enhance the quality of life for all Americans,” said Stephen Bennett, President and CEO of United Cerebral Palsy. “UCP is committed to shining a light on how well states are actually serving people with disabilities and, by extension, their families and communities. Also, we want to provide the proper national context for this data so that we can truly use it to drive progress.”

To download and read the entire Case for Inclusion report or explore the data tables, visit cfi.ucp.org.


Significant Takeaways from the 2015 Ranking

Promoting Independence

  1. All States still have room for improvement, but some States have consistently remained at the bottom since 2007, including Arkansas (#49), Illinois (#47), Mississippi (#51) and Texas (#50) primarily due to the small portion of people and resources dedicated to those in small or home-like settings in these four states. Mississippi and Texas also do not participate in NCI.
  1. 32 States, down from 38, meet the 80/80 Home and Community Standard, which means that at least 80 percent of all individuals with ID/DD are served in the community and 80 percent of all resources spent on those with ID/DD are for home (less than 7 residents per setting) and community support. Those that do not meet the 80/80 standard are Arkansas, Delaware, Florida, Illinois, Indiana, Iowa, Kentucky, Louisiana, Mississippi, New Jersey, North Carolina, North Dakota, Ohio, Oklahoma, South Carolina, South Dakota, Texas, Utah and Virginia.
  1. As of 2013, 14 States report having no state institutions to seclude those with ID/DD, including Alabama, Alaska, Hawaii, Indiana, Maine, Michigan, Minnesota, New Hampshire, New Mexico, Oregon, Rhode Island, Vermont, West Virginia and Washington, D.C. Another 10 States have only one institution each (Arizona, Delaware, Idaho, Montana, Nebraska, Nevada, North Dakota, South Dakota, Utah and Wyoming). Since 1960, 220 of 354 state institutions have been closed (5 more in the past year alone), according to the University of Minnesota’s Research and Training Center on Community Living. Another 13 more are projected to close by 2016 in California, Massachusetts, New Jersey (3), New York (2), Oklahoma (2), Tennessee (2) and Virginia (2)
  1. 26 States, up from 18, now report meeting the 80 percent Home-Like Setting Standard, which means that at least 80 percent of all individuals with ID/DD are served in settings such as their own home, a family home, family foster care or small group settings like shared apartments with fewer than four residents. The U.S. average for this standard is 79 percent. Just eight States meet a top-performing 90 percent Home-like Setting Standard: Arizona, California, Colorado, D.C., Hawaii, Nevada, New Hampshire, and Vermont.
  1. Ten States, up from seven last year, report at least 10 percent of individuals using self-directed services, according to the National Core Indicators survey in 29 States. These States include Arkansas, Connecticut, Florida, Hawaii, Illinois, Indiana, Kansas, Kentucky, Utah and Virginia.

Tracking Health, Safety and Quality of Life

  1. 42 States, up from 39 last year, participate in the National Core Indicators (NCI) survey, a comprehensive quality-assurance program that includes standard measurements to assess outcomes of services. A total of 29 States, a 50% increase from last year, reported data outcomes in 2014.

Keeping Families Together

  1. Only 14 States report that they are supporting a large share of families through family support (at least 200 families per 100,000 of population). These support services provide assistance to families that are caring for children with disabilities at home, which helps keep families together, and people with disabilities living in a community setting. These family-focused state programs were in Arizona, California, Delaware, Louisiana, Minnesota, Montana, New Hampshire, New Mexico, New York, South Carolina, South Dakota, Vermont, Wisconsin, and Wyoming. Alabama and Pennsylvania reported that they were providing higher levels of family support in last year’s ranking.

Promoting Productivity

  1. Just 8 States, down from 10 last year, report having at least 33 percent of individuals with ID/DD working in competitive employment. These States include Connecticut, Maryland, New Hampshire (newly added), New Mexico, Oklahoma, Vermont, Washington, and West Virginia (newly added). Louisiana, Nebraska, Oregon and Virginia reported that they met this threshold in last year’s ranking, but reported a decrease in competitive employment this year.
  1. 14 States report successfully placing at least 60 percent of individuals in vocational rehabilitation in jobs, with fifteen States reporting the average number of hours worked for those individuals placed being at least 25 hours and three States reporting at least half of those served getting a job within one year. Only California met the standard on all three success measures this year compared to last year’s ranking, when Nebraska and South Dakota were the only two states to report meeting all three thresholds.

Serving Those in Need

  1. Waiting lists for residential and community services are high and show the unmet need. More than 322,000 people, 5,000 more than last year, are on a waiting list for Home and Community-Based Services. This requires a daunting 44 percent increase in States’ HCBS programs. 16 States, a decrease from 22 last year, report no waiting list or a small waiting list (requiring less than 10 percent program growth).

Cheryl Hines wins BIG for people with disabilities!

UCP’s Celebrity Ambassador, actress Cheryl Hines (Curb Your Enthusiasm, Suburbgatory) appeared on last night’s episode of Celebrity Family Feud competing on behalf of United Cerebral Palsy and people with disabilities. Cheryl has a nephew with cerebral palsy and has been a strong supporter of UCP for many years.

Cheryl Hines and her Family. Photo from The University of Central Florida website.

Cheryl and her team, which consisted of her sister Rebecca, her brothers Chris and Michael and their mom, Rosemary, took the prize from family of television personality Niecy Nash (Reno 911). Team Hines big win raised $25,000 to be donated to UCP!
Congratulations to Cheryl and her family on their BIG WIN and helping support “A Life Without Limits” for people with disabilities and their families!
Though we may not all be as lucky as Cheryl and her family to be on Family Feud, you can still help to provide support and resources to people with disabilities and their families and contribute to our mission to provide “A Life Without Limits!” Find out more about how you can make a difference or donate today!

Supreme Court Decision a Big Win for People with Disabilities

UCP Applauds Decision to Uphold Pillar of Affordable Care Act

UCP applauds the decision made by the U.S. Supreme Court this morning upholding a key pillar of the Affordable Care Act: the availability of subsidies to participants in federally-established health care exchanges as intended by Congress.

The Supreme Court’s opinion in King v. Burwell, decides the question of whether the Affordable Care Act precludes the IRS from extending subsidies to participants in states that have not set up their own health insurance exchanges. The Fourth Circuit had previously held that the text of the ACA — stating that subsidies were available to exchanges “established by the State” — should be interpreted to make subsidies available to participants in federally established exchanges as well. The Court affirmed the Fourth Circuit, maintaining the status quo.

People with disabilities are especially impacted by the decision. Prior to the ACA, many people with disabilities were denied coverage due to a pre-existing condition or were priced out of the insurance market. A large number of people with disabilities are not in the labor force and lack access to employer sponsored insurance. And in many states with large populations of people with disabilities, the states refused to set up exchanges leading to the establishment of the federal exchange. The ability to take advantage of credits and subsidies offered through the federal exchange is critical to ensuring that the exchanges can continue to provide affordable health insurance.

“The Court’s opinion is a big win for people with disabilities and their families and caregivers,” said Stephen Bennett, President and CEO of United Cerebral Palsy. “For those who need to purchase health care coverage through the federal exchange – including many caregivers who have given up employer sponsored benefits in order to care for their loved ones with disabilities, affordable health care is a must. No family should go broke because they or their loved one has a medical need.”

In the 6-3 opinion by Chief Justice Roberts, Justice Scalia dissented, joined by Justices Thomas and Alito.

UCP Affiliates Earn Awards for Excellence

UCP would like to congratulate our 2015 Awards for Excellence winners! Thank you for your hard work and dedication you show to our affiliates organizations and people with disabilities and their families in your communities. These amazing programs and people will be honored at UCP’s Annual Conference in Chicago May 20-22.

The 2015 Award Winners:

Nina Eaton Program of the Year
Life Without Limits Clinic (nominated by UCP of Greater Birmingham)
This award is given to a program or service of a UCP affiliate that has made an extraordinary contribution to the quality of life of people with disabilities, enabling individuals served to become more independent, productive, or integrated into the family or community.
Ethel Hausman Volunteer of the Year
Dr. Eva Ritvo (nominated by UCP of South Florida)
This award is given to a volunteer who has made an outstanding contribution to a UCP affiliate and to the quality of life of people with disabilities.
Outstanding Youth
Daniel Lopez and Lake Periman (nominated by  UCP of Central Florida)
This award honors youth who have significantly enhanced the lives of people with disabilities through care giving, volunteerism, advocacy, innovation or fundraising.
Life Without Limits
O’Ryan Case (nominated by UCP National Staff)
This award goes to an individual with disabilities who has demonstrated leadership and achievement of such caliber as to be a significant role model to individuals with and without disabilities.
In addition to these awards, UCP will be honoring 100 outstanding volunteers at the Annual Conference, which we call our Victory 100. UCP believes in the strength of its volunteer network and values volunteers as the working core of the UCP family. The organization was founded through the efforts of volunteers, and we continue to build on that strength. The UCP Victory 100 Awards recognize the dedicated volunteers who have given 100 or more hours of support to UCP through our affiliates across the country.

Innovation Lab Coming to Chicago in May

Washington, D.C. (April 3, 2015) – United Cerebral Palsy (UCP) Life Labs initiative will bring an intensive, two-day design challenge called an Innovation Lab to Chicago May 19-20, 2015. Following successful events in London, Washington DC, and Sydney, Australia, the Innovation Lab (formerly called Enabled by Design-athon) brings together people from all walks of life under the principles of Universal Design to dream up the next big idea for people with and without disabilities.

At each Innovation Lab, this diversity of talent from a variety of fields is coached to use human-centered Universal Design concepts to solve every day problems as part of a competitive yet collaborative design challenge for team prizes. Designers, engineers, inventors, makers and hackers as well as professionals and caregivers in the disability field are all encouraged to contribute their unique perspectives to the.

The inaugural Innovation Lab scheduled for Chicago will take place at the Microsoft Technology Center and will be co-hosted by Smart Chicago. Smart Chicago is a civic organization devoted to improving lives in Chicago through technology by increasing access to the Internet, improving skills for using Internet, and developing meaningful products from data that measurably contribute to the quality of life of residents in the region and beyond.

“Here at Microsoft we are focused on improving the lives of citizens through technology,” said Shelley Stern Grach, Director of Civic Engagement at Microsoft. “The Innovation Lab focuses on the principles of design to provide opportunity and access to technology for diverse communities, and we’re excited to see what the teams come up with.”

Teams will design and build prototypes or present plans that demonstrate how products can rapidly be created to better fit with people’s lives and needs, no matter what those need may be. UCP’s Life Labs is intent on creating a movement of accessibility for the masses so that mainstream products work for as many people as possible, including those with disabilities and older people. The Innovation Lab events are meant to challenge preconceptions of assistive equipment, showing how products can be personalized, purposeful and beautifully designed too.

“Rather than continuing to retrofit our world to accommodate people with disabilities, there’s no reason why we can’t design our world to work for people of all abilities,” said Marc Irlandez, Director of UCP’s Life Labs.

Registration is now open at http://ucpinnovationlab.org/ Space is limited.



UCP Signs on to Letter to Congress Supporting the ACA

In time for the 5th anniversary of President Barak Obama’s signing of the Affordable Care Act (ACA) into law, UCP has signed on to a letter expressing our support for maintaining affordable access to comprehensive health insurance coverage for people with disabilities. Acting as part of the Consortium for Citizens with Disabilities (CCD) – a coalition of more than 70 organizations working for people with disabilities and their families – UCP joined in sending this letter to the U.S. House of Representatives and Senate demonstrating that support and expressing our concern that proposals and legislation being debated in the 114th Congress which may undermine the progress being made to ensure people with disabilities have access to the care they need to lead healthy, fulfilling and independent lives.

Read the full letter here.