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UCP does not conduct nor fund clinical research, however the following organizations provide information on cerebral palsy and other disability research:
UCP is a proud member of the CP Collaborative.
The Cerebral Palsy Research Network (CPRN) is a group of doctors, therapists and patient advocates collaborating to improve treatments and outcomes for people with CP. The network combines the expertise of doctors and therapists committed to treating CP with clinical epidemiologists and rigorous data collection practices to plan and execute high quality clinical trials and quality improvement protocols.
NINDS conducts, fosters, coordinates, and guides research on the causes, prevention, diagnosis, and treatment of neurological disorders and stroke, and supports basic research in related scientific areas.
UCP’s fact sheet, including statistics, risk factors and effects.
DHDS allows you to browse for data about disability, psychological distress, and disability-associated health care expenditures. Data can be viewed in interactive maps and in data tables that can be customized or downloaded.
The Compendium is an annual publication of statistics on people with disabilities and government programs that serve the population with disabilities. Contains national and state level data.
The National Survey of Children with Special Health Care Needs (CSHCN) provides information about CSHCN in all 50 States and the District of Columbia.
Data on carefully selected indicators of health coverage and health care financing for CYSHCN in every state plus DC and Puerto Rico
Other Helpful Resources
ClinicalTrials.gov is a registry of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial’s purpose, who may participate, locations, and phone numbers for more details.
Produced jointly by WHO and the World Bank, the Report suggests that more than a billion people in the world today experience disability. The report provides the best available evidence about what works to overcome barriers to health care, rehabilitation, education, employment, and support services, and to create the environments which will enable people with disabilities to flourish.