Lifespan Respite Reauthorization Act of 2017 (H.R.2535) (S.1188)


Respite Care is care provided for an individual with the specific objective of providing temporary relief for their primary caregiver. Typically, this comes in the form of caregiving assistance for several hours at a time, several times per week.  Respite care can take place in the care recipient’s home, in adult day care centers or overnight in assisted living or nursing home residences.

The purpose of the Lifespan Respite Care Reauthorization Act of 2017 is to reauthorize the Lifespan Respite Care Program. This program helps build coordinated State Lifespan Respite systems to improve access to services, helps family caregivers pay for respite or find funding sources, encourages development of new and innovative community and faith-based respite opportunities, and trains respite workers and volunteers. This legislation would reauthorize the aforementioned program through 2022, with funding of $15 million each year.


This bill was introduced in the Senate by Senator Susan Collins [R-ME] in May of 2017, and was referred to the Senate Committee on Health, Education, Labor, and Pensions.

An identical version of the  bill was also introduced in the House by Representative James Langevin [D-RI-2] and referred to the House Subcommittee on Health.

Key Terms:

Respite Care–refers to care provided with the objective of providing relief for the primary caregiver.

Secretary–refers to the Secretary of Health and Human Services.

Supporting Organizations:


Alzheimer’s Association

Alzheimer’s Foundation of America (AFA)

Alzheimer’s Impact Movement

American Association of Caregiving Youth

American Association on Health and Disability

The Arc of the United States

Association of University Centers on Disabilities

Brain Injury Association of America

Caring Across Generations

Caregiver Action Network

Child Welfare League of America

Christopher and Dana Reeve Foundation


Elizabeth Dole Foundation

Family Voices Generations United

The Jewish Federations of North America

LeadingAge Lupus Foundation

The Michael J. Fox Foundation

National Alliance for Caregiving

National Alliance of Children’s Trust & Prevention Funds

National Association for Home Care & Hospice

National Association of Area Agencies on Aging

National Association of Head Injury Administrators

National Association of Social Workers (NASW)

National Association of State Directors of Developmental Disabilities Services

National Association of State Directors of Special Education (NASDSE)

National Center on Caregiving

Family Caregiver Alliance

National Council on Aging

National Respite Coalition

National Multiple Sclerosis Society

Paralyzed Veterans of America

Rosalynn Carter Institute for Caregiving

United Cerebral Palsy

United Spinal Association


House of Representatives

(Original) Harper, Gregg [R-MS-3]

McCollum, Betty [D-MN-4]

McGovern, James P. [D-MA-2]

Schakowsky, Janice D. [D-IL-9]

Garamendi, John [D-CA-3]

DeFazio, Peter A. [D-OR-4]

Ruppersberger, C. A. Dutch [D-MD-2]


(Original) Baldwin, Tammy [D-WI]

Casey, Robert P., Jr. [D-PA]