Kaelan Richards: 202-973-7175, krichards@ucp.org



New format highlights states’ successes with managed care and employment initiatives

Washington, DC (May 2, 2013) – United Cerebral Palsy (UCP) released the 2013 Case for Inclusion today, an annual report that tracks the progress of community living standards for Americans living with intellectual and developmental disabilities (ID/DD).

The 2013 report, in addition to data from all previous reports since 2006, is available on UCP’s website using a robust new web module and design at http://ucp.org/the-case-for-inclusion/2013/.

Each state and the District of Columbia (DC) is analyzed and ranked based on five key outcome areas: promoting independence, tracking quality and safety, keeping families together, promoting productivity, and reaching those in need. Since 2006, these rankings enable families, advocates, the media and policymakers to fully understand each state’s progress or lack of improvement, and help to protect programs and services against unwise funding cuts, as well as guide future reforms to promote inclusion and enhance the quality of life for these, and ultimately all, Americans.

This year’s report highlights the progress that has been made, including:

·      38 states now meet the 80/80 Community standard, a dramatic increase from just 14 states in the 2007 report.

·      As of 2011, 13 states have no state institutions to seclude those with ID/DD. 10 states have only one institution each.

·      Since 1960, 209 of 354 state institutions have been closed, leaving just 149 remaining.

·      21 states now meet the 80% Home-like Setting standard (80% in settings with 1-3 residents).  This is up from just 17 states in the 2007 report.

·      34 states participate in the National Core Indicators, an increase from 24 in the 2007 report.

·      15 states were supporting a large share of families through family support, up from just 10 states in the 2007 report.

The report also identifies problems, such as:

·      All states still have room for improvement, but some states have consistently remained at the bottom since 2007, Arkansas (#50), Illinois (#48), Mississippi (#51) and Texas (#49).

·      Just ten states have at least one-third (33%) of individuals in competitive employment. This is a downturn from 2007, when 17 states met this standard.

·      Waiting lists for residential and community services are high and have grown from 138,000 people in 2007 to 268,000. At this level, a growth of 44 percent would be needed to meet the need for services.

New in the 2013 Case for Inclusion is highlights of three case studies—two that examine trends in managed care for those with ID/DD with reforms in Kansas and Massachusetts, and one outlining the success of Washington State in promoting competitive employment through its Employment First policy and practices.


·      KanCare represents one of the most aggressive and comprehensive Medicaid reforms affecting those with ID/DD, directly integrating work, health and community; broadening the scope of benefits; and prioritizing competitive employment and improving health outcomes.

·      As of January 1, 2014, individuals with ID/DD will be able to chose from the three private plans currently offered to Medicaid enrollees, all of which fully integrate medical and behavioral health benefits and home and community-based services.

·      KanCare will focus on specific outcomes to determine success, including: increased competitive employment; improved life expectancy; integration of physical health, behavioral health and home and community based services; and improved health.


·      The first state to implement a statewide pilot program (called a demonstration) for all dually eligible individuals, including those with ID/DD, Massachusetts aims to improve coordination of care, actual health outcomes, and overall quality of life for Americans with developmental disabilities.

·      Individuals with ID/DD will have new benefits available through the ICO plans, including restorative dental services, expanded personal care assistance, and greater access to durable medical equipment, and the program defines its success on actual outcomes.

·      Although the actual outcomes tracked have yet to be determined, some of the possible measures to be included include access, person-centered care, integration of services and enrollee outcomes.


·      Washington State’s Employment First policy supports employment and day program funds targeted for working-age adults and ensures that after nine months of employment services the individual may choose community access programs.

·      By focusing its efforts on this narrow window of time, Washington’s leaders and advocates addressed the difficult goal of finding a job directly through leadership, training and innovation, and clearly defined goals.

·      The impact of this was profound: in seven years, the number of individuals competitively employed rose from 4,440 in 2004 (before the policy) to 5,562 by 2011.

“The Case for Inclusion is a valuable tool for United Cerebral Palsy and advocates across the country to use as we work to advance the civil rights protections and public policies that help support individuals living with disabilities, ensuring fair and full citizenship for all Americans. This year’s report shows in great detail the states are able to provide services and supports that result in better outcomes for people with disabilities, as well as three case studies that can serve as road maps to success,” said Stephen Bennett, former President & CEO of United Cerebral Palsy. “It is our hope that the Case for Inclusion can be used to strengthen the efforts of states and advocates to advance the independence, productivity and full citizenship of people with disabilities.”

Using the interactive website, users can:

·      Compare state & national data.

·      View state scorecards.

·      Interact with the ranking map.

·      See highlights of the 2013 report, the top and bottom 10 states, most improved states and those with biggest drops, and facts about the best performing states.

·      Learn how to use the report to advocate for areas needing improvement in states, and promote achievements that maintain high quality outcomes, like eliminating waiting lists and closing large institutions.

·      View in-depth information about each of the states feature in the case studies: Massachusetts, Kansas and Washington State.

·      Users can pull individual state outcomes and measures, track each state’s performance over time, and compare states among one another and to the U.S. average. The Case for Inclusion data, tables and graphs are exportable and printable as needed for personal and professional use.

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About United Cerebral Palsy


United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.