UCP National Names Armando A. Contreras As The Next President & CEO

Contacts: Diane Wilush 678 313-3078
 Richard Forkosh
314-402-0528



 
 UCP National Names Armando A. Contreras As The Next President & CEO 

(Washington, DC) – United Cerebral Palsy, Inc., (UCP) the leading national organization which advocates and promotes the inclusion and full citizenship of individuals living with cerebral palsy and other disabilities, announced today that its Board of Trustees has named Armando A. Contreras as President and CEO effective June 5, 2017. Contreras is currently the CEO of UCP of Central Arizona and will replace Richard Forkosh, who is currently serving as UCP Inc., Interim CEO.“We are delighted to have Armando join UCP as the new President and CEO,” said Diane Wilush, Chairman of UCP National’s Board of Trustees. “The selection process was rigorous, and Armando is the perfect choice; his leadership at UCP of Central Arizona and track record of organizational management, fiscal responsibility, and his mission driven focus will continue to build a strong future for UCP National. Most importantly, Armando is devoted to serving and empowering people with disabilities and he truly embodies everything our organization stands for.”

“It has been a privilege, honor and a true blessing to have served as the CEO of United Cerebral Palsy of Central Arizona for the past seven years,” said Armando Contreras. “I am abundantly grateful to have worked with purpose-driven, passionate staff that are committed to enhancing the lives of thousands of children, teens and adults by providing the resources necessary to build a life without limits! I would also like to express my sincere gratitude to Richard Forkosh for his executive leadership and exceptional integrity during his term as Interim CEO. I look forward to working closely with the UCP National Board, Affiliates and Staff to address the priorities at hand, set goals and build a pathway to sustainability.

As the CEO of United Cerebral Palsy of Central Arizona for the past seven years, Armando has increased net assets, built internal capacity, standardized business processes and enhanced the trust and communication in the organization. Contreras was instrumental in executing an agreement with Circle K, a major fundraiser collaborator of UCP’s for over 30 years, responsible for expanding therapy services for underserved children at the state of the art, UCP Downtown clinic, and diversified the organization’s grant and philanthropic base. Contreras has significantly increased UCP’s community awareness of the vital programs and services offered by UCP not only within the philanthropic circles, but also with public officials and key stakeholders in the disability community. Today, UCP of Central Arizona is one of the most highly respected agencies in Arizona serving children, teens and adults with various disabilities.

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About United Cerebral Palsy:

United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 70 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit .

What You Need to Know About College as a Student with a Disability

The transition from high school to college can be both a scary and exciting time for every student. College is a whole new world, and unlike anything most students have yet experienced.

 

Before heading off to college, students have questions and concerns about their future. Most students probably wonder about their major, whether they will like the school they have chosen, and what their new friends will be like, but for students with disabilities, the questions can often be a little more complicated.

 

Students with disabilities may wonder about accommodations, accessibility, services and supports, and getting help with everyday needs. And these questions may not be easy to answer.

 

As someone who’s a former college student, and an individual with a disability, I wanted to share some of the things that I wish I had known freshman year in hopes that it may make your transition a little bit easier.

 

Self Advocacy Is Key:

Growing up, it was typically the responsibility of your parents, teachers, or other administrators to make sure you got the accommodations and supports you needed to be successful in school. But, in college, it becomes primarily your responsibility.

 

Self-advocacy is always important but becomes especially essential when navigating college. College is often the first time students have lived away from home, and it is important to remember that you are your own best advocate: there are lots of supports in place to help you be successful, but you have to be proactive and reach out so that the people around you know what you may, or may not need.

 

Most schools have Offices or Departments of Disability Services in place to help students with disabilities get the accommodations they need, such as note-taking support, extra time on exams, or any other reasonable academic accommodation, but nobody from the office is going to seek you out, especially if they don’t even know you’re there.

 

Make a point to become familiar with the services and supports that exist on your campus. Talk to the disability support staff to work on a plan for your accommodations to help ensure success from day one. You are in college now and, like your peers without disabilities, there are still people there to help you, but for the most part, you are in the driver’s seat now!

 

The Laws Are Different:

K-12 education for students with disabilities is mandated under the Individuals with Disabilities Education Act (IDEA), this means that students with disabilities are entitled to public education and that it is the responsibility of the school to see that all students are getting an appropriate education. Colleges don’t fall under IDEA, and therefore, are not required to make accommodations to the same degree as the public school system.

 

In college, students with disabilities are protected from discrimination, such as inaccessibility of buildings, under the Americans with Disabilities Act (ADA). Schools must provide reasonable accommodations such as notetakers or extra time on exams, but they don’t have any obligation to modify coursework to accommodate students with disabilities or provide additional supports such as assistance with personal care or activities of daily living to ensure a student is successful.

So, if you are, for example, a wheelchair user who needs help to get in and out of bed or perform other daily activities, the ADA requires your school to provide you with an accessible dorm room, but there is no legal obligation to provide you with an assistant or other types of personal care support.

 

This is important to know because it means that you will need to set up the supports you need on your own before you head off to school. Some schools have programs to help students with personal care needs, but this is not a requirement for all schools. Look into what your school offers to figure out what kind of supports may be available.

 

For more information about the difference in laws governing K-12 education and college check out the resources below:

 

https://umaine.edu/disability/accommodations-high-school-vs-college/

 

https://www2.ed.gov/about/offices/list/ocr/transitionguide.html

 

https://www2.ed.gov/about/offices/list/ocr/docs/auxaids.html

 

 

It’s Okay to Reach out for Help and Support:

If you’re feeling overwhelmed, or struggling more than you thought you would, there is absolutely no shame in asking for help. Mental and emotional well-being is just as important as physical health, and academic support.

 

Most colleges have a variety of services to support students from health centers, to counseling and other mental health services, and wellness programs, in addition to academic supports. Take advantage of the support and community that exists around you, and don’t be afraid to reach out.

 

Additionally, there are lots of groups and activities on college campuses, and many colleges even have organizations run by and for students with disabilities. These organizations may or may not be support oriented. Many of them may just be social groups, or groups focused on advocacy and activism.

 

Whether or not they are disability focused, student organizations and extracurricular activities can be another great place to find support in college.

 

 

Transition Is Not One-Size-Fits-All:

Everybody is unique, which means that everyone’s experience in transitioning from high school to what comes after will look, feel, and be, very different. Whether you’re planning to go to school far away, attend college close to home, or do something else after high school, it’s important to remember there is no right way to transition from high school to beyond.

 

Whatever you decide to do after high school graduation, focus on making sure that it’s the right option for you, rather than worrying about whether it’s what other people expect.

 

For more information you need to know,  check out the topics below:

What You Need to Know About Preventative Care and Disability
What You Need to Know About Sexual and Reproductive Health and Disability

UCP Expresses Concerns About American Health Care Act of 2017

Last Thursday, Members of the House of Representatives passed, by a narrow margin, H.R. 1628 (the American Health Care Act of 2017, or AHCA for short). United Cerebral Palsy, along with our colleagues in Washington, expressed concerns about the bill in its current form (as well as previous proposals that were circulated).

 

We joined coalitions focused on the preservation of coverage for individuals with pre-existing conditions, coverage for rehabilitative and habilitative services, and protecting Medicaid. We also took part in advocacy efforts with the Consortium of Citizens with Disabilities, a coalition of 100 national disability organizations working together to advocate for national public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society. In short, we are not alone in our concerns and we will continue to work together to fight this harmful bill.

We share the concerns many of you have voiced to us about the lack of review by the Congressional Budget Office of this latest bill, and the potentially devastating consequences the House bill as written could have on the 175,000 families served by UCP’s affiliate network (and really all individuals with disabilities who rely on Medicaid for health coverage and/or long-term services and supports).

We are hopeful that as the Senate deliberates, more information about the projected impact of the House bill will become known and that the Senate will not pass a bill that would bring harm to our community.

Senators need to hear from constituents, and we hope you will tell your story. To learn more about UCP’s public policy work and to get involved, please visit http://ucp.org/what-we-do/public-policy/

Transition Is…

 

Sometimes, unexpected or scary but also real and exciting

 

There are specialty clinics and hospitals throughout the country to address the unique needs of children with disabilities like cerebral palsy, but the same is not true for adults. Once people with disabilities reach the age of 18 or 21 they often have to stop seeing their pediatric providers, only to find there is no adult provider to take their place.

 

This is a major issue that affects young adults and adults with disabilities throughout the country, and contributes to a range of health inequalities and other issues. As we have addressed before, transitioning from pediatric care to adult care can be particularly difficult if your new doctor has little to no familiarity with disability.

 

Adults with disabilities need access to the same care as other adults, but they also need providers who are familiar with the unique needs that may come along with disability, and that is when young adults with disabilities can feel as though they’ve entered a void. However, one UCP affiliate is working to bridge that gap in a particularly creative and comprehensive way.

 

UCP of Minnesota/Gillette Specialty Children’s Hospital is the home of Gillette Lifetime, a clinic for patients with lifelong disabilities such as cerebral palsy and spina bifida who are ages 16 or older.

 

Kathy Lindstrom, an Advanced Practice Registered Nurse, at the Lifetime Clinic, says it grew out of an unmet need in the community.  Lifetime Clinic’s Transition Program started as, “a grassroots movement put together based on patient needs. “

 

Kathy Lindstrom Advanced Practice Registered Nurse, at the Lifetime Clinic

Kathy Lindstrom Advanced Practice Registered Nurse, at the Lifetime Clinic

 

 

Easier, with the right resources and support

 

The services at Gillette Lifetime Transition Clinic merge medical needs with the unique psychological and social needs of transition-aged young adults with disabilities. As Lindstrom explains “everything seems to change when patients reach the late teenage years; it’s not just medical, but in all aspects of their lives.”

 

Lindstrom says, “Legal decision making becomes an issue, [so does vocational] planning, post high school planning and discussions about future living arrangements.  Parents are bogged down with meeting the challenges of daily life, and sometimes it can be hard to develop a vision for the future… and so transition sneaks up on families.”

 

Parental involvement in the process often shifts at this stage, so it’s also important to prepare both parents and young adults for this change.

 

Transition is not a simple process that happens overnight, or automatically, on a patient’s 18th birthday. Lindstrom understands that it can be hard for patients to come to the clinic for the first time, as many of them have had the same providers for their entire lives, and it can be hard to let go.

 

Lifetime makes this transition a little bit easier by allowing patients to transfer some care to adult providers, while continuing to collaborate with other specialty providers for other aspects for a period.

 

During their first visit to the clinic, patients meet with Lindstrom and her colleagues to discuss transition, and outline the issues that are most important to them. These appointments are conversations, not exams, and take place in a conference room, as opposed to an exam room. The appointment gives patients, and their families, an opportunity to discuss any questions or concerns they may have, and to get a feel for the services available at Lifetime.

 

 

About choices, and coordination

 

Lifetime is focused on specialty medical needs, and is not a primary care facility. Lindstrom offers the following advice to any individuals with disabilities looking for primary care providers:

 

  • Meet with the family Primary Care Provider (PCP) and talk about the potential of becoming a patient. If the doctor already sees the rest of the family, they might be a good start for patients with disabilities as well. She encourages patients to integrate into their family’s practice whenever feasible.

 

  • Arrange an advanced meeting with the PCP and see how accessible the facility is before becoming a patient in the practice.

 

  • If at first you don’t succeed, try try again. Lindstrom cautions that you may not click with the first provider you meet with, but that doesn’t mean you won’t find somebody who works for you.

 

  • Your insurance will affect your options for a PCP, so remember to check first to make sure your preferred provider is covered!

 

Lindstrom also encourages primary care providers to connect with a patient’s specialty care providers. Gillette operates a telehealth triage line for all patients and their providers, regardless of age. If a primary care provider is unsure of how to treat a patient, they can reach out and communicate with other members of the patient’s care team.

 

In addition to medical care, Gillette Lifetime supports patients with the social aspects of transition such as recreation, community integration and helps prepare them for changing relationships with their family and friends, even giving them space to talk about the potential of romantic relationships.

 

Transition is difficult for every young adult, but when you have a disability, you may not know where to go, and you may have a unique set of questions that you feel like no one can answer, which is why transition clinics like Gillette Lifetime’s Transition Clinic are so important.

 

Learning more

 

There are several clinics that specialize in current medical recommendations for young adults with cerebral palsy throughout the country.

 

If you are located outside of Minnesota or the Midwest, and would like to see if there is a transition clinic near you, please be sure to check out our latest guide on healthcare for adults with cerebral palsy and related disabilities for clinics and additional resources that may be helpful in the transition from pediatric to adult health care.

 

Patient with a practitioner at the Lifetime Clinic

WineBev Creating Opportunity to “Work Without Limits”

The Napa Valley is known for gorgeous weather and of course for wine. UCP’s affiliate in the Napa Valley area, UCP of the North Bay, works to bring together the wine industry and individuals with disabilities. WineBev Services began in 2007 and is helping to acknowledge the need for labor in the region, while opening doors for more accessible and competitive employment for people with disabilities. “It was a natural fit given the area,” says Mike Lisenko, President of Business Operations for WineBev.

 

WineBev works with around 15 to 20 wineries in the area at any given time during the season. They currently employ 115 individuals with disabilities, working in all areas – from packing to fulfillment. Potential employees are referred to WineBev from the local regional center in Napa, which helps to pair individuals with providers in the community. Candidates go through a job skills training course before finding the area that best suits their skills. WineBev provides both community-based and supportive employment. They also work with the the hospitality industry in the area, giving greater flexibility to area employers and finding roles that best suit each individual employee’s strengths.

 

WineBev estimates that nearly 200 individuals have come through the program, with several finding employment on their own after their time there. At UCP of the North Bay, living a “life without limits” plays a role in every aspect of life – both work and play. At WineBev, “Work Without Limits” is more than just a tagline – it’s a purpose and flows through every facet of WineBev, from monitoring to packing, to creating employment opportunity for all.

 

Special thanks to Mike Lisenko, President of Business Operations for WineBev.

 

For more information on WineBev, please visit www.winebev.com.

 

To find out more about UCP of the North Bay and their programs, visit their website at http://ucpnb.org/.

 

Jeffrey Cooper, Recipient of the Kathy O. Maul Leadership Award at 2017 UCP Annual Meeting

Congratulations to Jeffrey Cooper, President, and CEO of UCP of Central Pennsylvania on being named the recipient of the Kathy O. Maul Leadership Award at the 2017 UCP Annual Meeting in Nashville, TN!

Thank you for all of your hard work, leadership, and dedication to individuals with disabilities!

Jeffrey Cooper, President, and CEO of UCP of Cental PA with Interim CEO of the UCP national office, Rick Forkosh.

UCP Remembers Jack Schillinger

Gloria_Jack

On January 4, 2017, UCP lost a great friend, volunteer, supporter, leader and advisor with the passing of Jack Schillinger at the age of 96. Jack was the “face” of the Bellows Committee that he Chaired until recently, was Chair of the UCP Board of Directors in 1991, and was member of the Finance Committee for many years. In 2015, UCP honored Jack with the Chair Award at the Annual Conference in Chicago.

Jack was a huge part of UCP, since 1955,
and we can never thank him enough for his dedication to UCP and to the lives of people with disabilities.

Our thoughts and prayers are with the family at this difficult time. Jack’s obituary can be found within his guest book. To add a note of sympathy, give your condolences to the family, and to share your memories of Jack, please visit the Guest Book.

UCP and the National Council on Disability – “First Responders and Disability”

On December 9, 2016, UCP and the National Council on Disability joined together to host a day of conversation surrounding first responders and the disability community. Bringing together diverse perspectives from across the country, the day was a raw and honest look at the way law enforcement and other members of the first responder community interact with those living with disabilities.

Watch the footage (captioned) below:

 

View the Program Agenda

View the Event Summary here

 

United Cerebral Palsy and the National Council on Disability Coming Together for “First Responders and Disability”

UCP-NCD2United Cerebral Palsy (UCP) and the National Council on Disability (NCD) are coming together to host a day long convening on December 9th, 2016, focusing on First Responders and the Disability Community. The discussion will center on first responder reform and the impact on the disability community.

The purpose of this discussion is to gather information and resources to inform NCD’s 2017 policy project focusing on how to transform the policies and practice around First Responders engagement with the disability community. This conversation will include experts in criminal justice reform, disability rights advocates, policymakers, law enforcement organizations, and individuals impacted by state violence directly.

Please join us from 9:30 am to 2:30 pm EST in person or tune in to the live stream.

For more information, including how to RSVP: Please click here.

See the program agenda here.

Read Speaker Bios here.

We’re Partnering With The Mighty!

We’re thrilled to announce a new partnership that will bring United Cerebral Palsy’s resources to the front of The Mighty‘s wide-reaching readership. We will now  have a growing home page on The Mighty , and appear on many stories on the site, allowing us to get many more people involved with our organization.

The Mighty is a story-based health community focused on improving the lives of people facing disease, disorder, mental illness, and disability. It is estimated that 764,000 children and adults in the U.S. manifest one or more of the symptoms of cerebral palsy, and that 1 in 5 Americans live with some form of disability. They want more than information. They want to be inspired. The Mighty publishes real stories about real people facing real challenges.

We’re dedicated to providing comprehensive support and community for children and adults living with cerebral palsy, as well as other disabilities, and their families. With this partnership, we’ll be able to help even more people.

We encourage you to submit a story to The Mighty and make your voice heard.

Here’s an example of the kind of stories you’ll find on The Mighty: Tommy Hilfiger Launches Adaptive Collection for Children With Disabilities