UCP Releases 2016 Case for Inclusion Report

 

 

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FOR IMMEDIATE RELEASE

For Inquiries: Kaitlyn Meuser, kmeuser@ucp.org, 202-973-7185

UNITED CEREBRAL PALSY RELEASES STATE RANKINGS ON SERVICES FOR AMERICANS WITH DISABILITIES

Arizona, Vermont, New Hampshire, Michigan & Hawaii Top 2016 List

Washington, D.C. (September 20, 2016) – United Cerebral Palsy (UCP) released the 2016 Case for Inclusion today, an annual report and interactive website used to track state-by-state community living standards for Americans living with intellectual and developmental disabilities (ID/DD).

The Case for Inclusion examines data and outcomes for all 50 states and the District of Columbia (DC), ranking each on a set of key indicators, including how people with disabilities live and participate in their communities, if they are satisfied with their lives, and how easily the services and supports they need are accessed. By taking these factors into account, UCP is able to publish this comprehensive analysis of each state’s progress or failures in providing critical services to individuals living with disabilities.

In addition to rankings, the report digs deeper into two critical issues facing people with disabilities and their families: waiting lists for services as well as support for the transition from high school into an adult life in the community. Two case studies examine how states are approaching those issues.

Since 2006, the rankings have enabled families, advocates, the media and policymakers to measure each state’s progress — or lack of improvement — and gain insight into how the highest-ranking states are achieving their success. To enhance the usability of the report, UCP publishes tables of the data from which the report was compiled on an interactive website where visitors can compare and contrast results among selected states.

“Ultimately, the goal of this research is to promote inclusion and enhance the quality of life for all Americans,” said Richard Forkosh, Interim President/CEO of United Cerebral Palsy. “UCP is committed to shining a light on how well states are actually serving people with disabilities and, by extension, their families and communities. Also, we want to underscore the national context for this data so that stakeholders can use this information to drive progress.”

“For more than a decade, UCP has ranked states to showcase the good and to highlight what needs improvement. The fact is real progress is being made. More Americans with ID/DD are living in the community rather than being isolated in large state institutions. But much more work needs to be done to reduce waiting lists, increase employment and expand support to families. This annual ranking clearly shows the true picture of what’s happening and what should be happening in the states for our friends and neighbors with ID/DD,” stated Tarren Bragdon, the report’s author since 2006.

To download and read the entire Case for Inclusion report, or explore the data tables, visit cfi.ucp.org.

Significant Takeaways from the 2016 Rankings

Promoting Independence

1. All states still have room for improvement, but some states have consistently remained at the bottom since 2007, including Arkansas (#49), Illinois (#47), Mississippi (#51) and Texas (#50) primarily due to the small portion of people and resources dedicated to those in small or home-like settings in these four states.

2. 32 states, same as last year, meet the 80/80 Home and Community Standard, which means that at least 80 percent of all individuals with ID/DD are served in the community and 80 percent of all resources spent on those with ID/DD are for home (less than 7 residents per setting) and community support. Those that do not meet the 80/80 standard are: Arkansas, Delaware, Florida, Illinois, Indiana, Iowa, Kentucky, Louisiana, Mississippi, New Jersey, North Carolina, North Dakota, Ohio, Oklahoma, South Carolina, South Dakota, Texas, Utah and Virginia. Connecticut is very close (with 79% spent on HCBS).

3. As of 2014, 15 states report having no state institutions to seclude those with ID/DD, including: Alabama, Alaska, Colorado, Hawaii, Indiana, Maine, Michigan, Minnesota, New Hampshire, New Mexico, Oregon, Rhode Island, Vermont, West Virginia and Washington, D.C. Another 9 States have only one institution each (Arizona, Delaware, Idaho, Montana, Nevada, North Dakota, South Dakota, Utah and Wyoming). Since 1960, 205 of 354 state institutions have been closed, according to the University of Minnesota’s Research and Training Center on Community Living.

4. 27 states, up from 26, now report meeting the 80 percent Home-Like Setting standard, which means that at least 80 percent of all individuals with ID/DD are served in settings such as their own home, a family home, family foster care or small group settings like shared apartments with fewer than four residents. The U.S. average for this standard is 80 percent. Just eleven (up from 8) States meet a top-performing 90 percent Home-like Setting standard: Alaska, Arizona, California, Colorado, D.C., Michigan, Nevada, New Hampshire, Vermont, Washington, and Wisconsin.

5. Fifteen states, up from ten last year, report at least 10 percent of individuals using self-directed services, according to the National Core Indicators survey in 36 states. Five states report at least 20 percent being self-directed. These states include: Florida, Illinois, New Hampshire, Utah and Vermont.

Tracking Health, Safety and Quality of Life

6. 47 states, up from 42 last year, participate in the National Core Indicators (NCI) survey, a comprehensive quality-assurance program that includes standard measurements to assess outcomes of services. A total of 36 states, up from 29 last year, reported data outcomes in 2015.

Keeping Families Together

7. Only 15 states, up from 14 last year, report that they are supporting a large share of families through family support (at least 200 families per 100,000 of population). These support services provide assistance to families that are caring for children with disabilities at home, which helps keep families together, and people with disabilities living in a community setting. These family-focused state programs were in: Arizona, California, Delaware, Louisiana, Minnesota, Montana, New Hampshire, New Mexico, New York, Pennsylvania, South Carolina, South Dakota, Vermont, Wisconsin, and Wyoming.

Promoting Productivity

8. 10 states, up from 8 last year, report having at least 33 percent of individuals with ID/DD working in competitive employment. These states include: Connecticut, Maryland, New Hampshire, New Mexico, Oklahoma, Oregon, Rhode Island, Vermont, Washington, and West Virginia.

9. 15 states report successfully placing at least 60 percent of individuals in vocational rehabilitation in jobs, with nineteen states reporting the average number of hours worked for those individuals placed being at least 25 hours and four states reporting at least half of those served getting a job within one year. No states met the standard on all three success measures.

Serving Those in Need

10. Waiting lists for residential and community services are high and show the unmet need. Almost 350,000 people, 28,000 more than last year, are on a waiting list for Home and Community-Based Services. This requires a daunting 46 percent increase in States’ HCBS programs. 18 states, an increase from 16 last year, report no waiting list or a small waiting list (requiring less than 10 percent program growth).

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 70 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

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To view this press release in PDF format: click here.

UCP Launches “Speak for Yourself,” a PCORI-Funded Project to Establish a Patient-Centered Research Network for Individuals with Disabilities

FOR IMMEDIATE RELEASE                                  Contact: Randi Moore, (202) 494-4638

Washington, D.C. (May 3, 2016) – United Cerebral Palsy (UCP) has launched Speak for Yourself, a two-year project funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award to address the various barriers to access that discourage or prevent individuals with disabilities from participating in medical research.

Speak for Yourself is a movement that will build a network of individuals with disabilities who are trained and empowered to become directly involved in medical research that improves their health outcomes.

“People with disabilities have long expressed the desire not only for more opportunities to participate in research, but for a voice in the decision-making around the ‘what’, ‘how’, and ‘why’ of disability-focused research. Speak for Yourself aims to empower people with disabilities to work alongside researchers to ensure that the future of research meets the needs of real people,” said Stephen Bennett, UCP’s President and CEO.

Speak for Yourself will include various opportunities for online engagement and access to resources on research participation. Each year of the project will culminate in a one-day convening bringing together advocates and researchers to collaborate on how to build a more dynamic relationship.

“To promote health equity among people with disabilities, we need to pursue research that is meaningful to those most affected. To do so, people with disabilities must have a say in the research process. Speak for Yourself is a part of the solution to transform science and promote patient-centered outcomes,” said Katherine McDonald, PhD, Associate Professor of Public Health at Syracuse University.

UCP believes that relevant and well-informed patient-centered clinical research is essential to advancing healthcare access, quality, and choice for individuals with disabilities. A patient-centered approach to research that encourages individuals with disabilities to provide input on the gaps in evidence, best practices, and direction of disability-focused research is central to creating a life without limits

More information about Speak for Yourself can be found at http://mylifewithoutlimits.org/speak-for-yourself/

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About United Cerebral Palsy

United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with a network of affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence. For more information, please visit http://ucp.org.


About The Patient-Centered Outcomes Research Institute

The Patient-Centered Outcomes Research Institute (PCORI) is an independent, nonprofit organization authorized by Congress in 2010 to fund comparative effectiveness research that will provide patients, their caregivers, and clinicians with the evidence needed to make better-informed health and healthcare decisions. Its mission is to fund research that will provide patients, their caregivers, and clinicians with the evidence-based information needed to make better-informed healthcare decisions. PCORI is committed to continually seeking input from a broad range of stakeholders to guide its work.

 

WORLD CP CHALLENGE ANNOUNCES TEAM LONG BROTHERS AS 2013 AMBASSADORS

FOR IMMEDIATE RELEASE

CONTACT: Kaelan Richards: 202-973-7175, krichards@ucp.org

WORLD CP CHALLENGE ANNOUNCES TEAM LONG BROTHERS AS 2013 AMBASSADORS 

Connor and Cayden, who has CP, compete as a team in triathlons 

Washington, DC (August 30, 2013) – United Cerebral Palsy (UCP) is thrilled to announce that the Team Long Brothers, Connor and Cayden Long, will serve as the 2013 World Cerebral Palsy (CP) Challenge Ambassadors.

Connor, 10, and Cayden, 7, compete in triathlons and were named the 2012 Sports Illustrated SportsKids of the year— but they are more than just an active pair of brothers. Cayden has spastic cerebral palsy, and cannot walk or speak. Connor pushes Cayden in a stroller, pulls him in a raft and tows him behind his bicycle in each race. And along the way, this amazing duo has shown that anything is possible with the love and support of their friends and family. 14 triathlons later, Team Long Brothers has truly embodied their motto to “Keeping Rolling!”

Team Long Brothers’ next competition is the World CP Challenge, four-week event to raise awareness and support for people with cerebral palsy and other disabilities. Beginning on September 4, teams from around the world will challenge themselves to take 10,000 steps a day— and nearly any activity, including biking, physical therapy and yoga, can be converted into steps on the World CP Challenge website. Last year, nearly 7,000 people worldwide participated in the challenge and raised an incredible $774,399. Team Long Brothers is committed to helping make this year an even bigger success!

“Our family is so honored to see the boys as the ambassadors for the Challenge, we hope that other families will see the importance of being active and healthy as much as we do, and the great thing about this challenge is anyone can take part and it will help families and individuals living with the everyday challenges of Cerebral palsy,” said the Long family. “So always remember to Keep Rolling!!”

“We are thrilled to have Team Long Brothers as ambassadors for the World CP Challenge. Their story shows that, with the support they need, anything is possible for people with disabilities,” said Stephen Bennett, President and CEO of UCP. “Connor and Cayden are an inspiration, and we look forward to watching their progress throughout the month—and hope we can keep up!”

For more information about the Long Brothers and their story, please visit their website,www.teamlongbrothers.org.

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About United Cerebral Palsy

United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

UCP: CONGRESSIONAL REPORT SHOWS NEED FOR IMMEDIATE CHANGE

 UCP: CONGRESSIONAL REPORT SHOWS NEED FOR IMMEDIATE CHANGE 

Office of Compliance highlights inaccessibility of Capitol buildings 

Washington, DC (October 19, 2012) – United Cerebral Palsy (UCP) released the following statement today in response to the Office of Compliance’s Biennial Report on the 111th Congress, “Americans with Disabilities Act Inspections Relating to Public Services and Accommodations.”

The report, which is required by the Congressional Accountability Act and Americans with Disabilities Act (ADA), examined the accessibility of the House Office Buildings, as well as bathrooms throughout the Capitol complex. The findings show that while progress has been made in making the buildings more accessible, there are still significant problems:

·      93% of curb ramps on the sidewalks are not in compliance with ADA Accessibility Standards.

·      54% of the total exterior pathway barriers are a safety risk for people with disabilities.

·      None of the bathrooms inspected met ADA standards.

“For the 57 million Americans living with disabilities today, this is more than just a report— this is stark reminder that 22 years after the passage of the ADA, the fight for basic civil rights is not over. All Americans should have the ability to access their representatives and attend and testify at hearings, but it is clear that this is not the case. We urge Congress to act immediately to correct the safety issues, and work to ensure that all of the problems are fixed,” said Stephen Bennett, President & CEO of UCP. “The findings in this report are very disappointing, and show how much progress is still needed to ensure that all Americans have the same rights and opportunities.”

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About United Cerebral Palsy

United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

UCP ANNOUNCES NEW TRUSTEES, NATIONAL LEADERS

 NORTH CAROLINA ATTORNEY TAKES HELM AS NEW CHAIR

Washington, DC (October 15, 2012) – United Cerebral Palsy (UCP) has elected four new members of its national Board of Trustees, and has elected four leaders to serve as officers of the Board.

The Board of Trustees plays a critical role at UCP, helping to guide the organization and its efforts to educate, advocate and provide support to people with disabilities across the country. With 18 members, including four officers, the Board is a diverse and active group that works together to move UCP forward toward its goal of creating a life without limits for people living with disabilities. 

Selection of Officers

Edward G. “Woody” Connette, an attorney in Charlotte, North Carolina, will lead the organization’s Board of Trustees as its new Chair, replacing outgoing Chair Bruce Merlin Fried, the DC-based Managing Partner of law firm SNR Denton.  Connette has long had an interest in public policy and litigation related to disabilities, health care and mental health. In his legal work, he has fought to protect the rights of people living with disabilities and challenged the living conditions and institutionalization practices in North Carolina and Tennessee. He is involved in several professional organizations and has also served on the Executive Board and as President of the National Patient Advocate Foundation. Connette’s volunteer work with disability groups stretches back more than twenty years, and he played a critical role in the merger of UCP and Easter Seals affiliates in North Carolina and went on to become Board Chair for the newly created Easter Seals/ UCP North Carolina and Virginia.

“On behalf of United Cerebral Palsy, and all of our affiliates, I am delighted to welcome Woody as our new Chair for our Board of Trustees,” said Stephen Bennett, President & CEO of United Cerebral Palsy. “Woody has been a valued part of UCP for more than two decades, and his commitment and dedication to bettering the lives of people living with disabilities is inspiring. We look forward to his leadership in the years ahead.”

“It is an immense privilege to be selected for this position with such a great organization,” said Connette. “United Cerebral Palsy is internationally recognized as a leader in the disability community, and I will do my best to help create a better day for those living with disabilities every day.”

Connette is joined by three other volunteer leaders, including:

·       Ian Ridlon, who has been selected as the organization’s new vice chair.  Ridlon is general counsel and director of Legal Services at the Rhode Island Interlocal Risk Management Trust. Mr. Ridlon has been involved with United Cerebral Palsy on the state and national level for over 15 years.  On the state level, he has been the Board Chair for several terms and has also chaired two other non-profit organizations created by the affiliate that provide independent living facilities for low income individuals with developmental disabilities. On the national level, he has previously served on the Board of Trustees and is a recipient of the 2004 Chairperson’s Award.  He has also served on numerous committees and was previously the chair of the nominating committee and the by-laws committee. and has served as a Board member for UCP of Rhode Island

·       Mark Boles will serve as the organization’s treasurer.  He currently serves as Chief Executive Officer of Baylor Institute for Rehabilitation at Frisco (Texas). With nearly 30 years experience as a healthcare executive, he has been involved with United Cerebral Palsy on the local, state, and national levels for more than 20 years, having received the Ethel Hausman Volunteer of the Year Award in 2003 and the UCP Chairman’s Award in 2004.

·       Pamela Talkin will serve as secretary of the Board of Trustees.  Talkin was sworn in on July 16, 2001 as the tenth Marshal of the Supreme Court of the United States.  Talkin is the first woman to hold the position. She was elected to UCP Board of Trustees in 2011.

New Members

These new leaders are joined by five new distinguished Trustees who were elected at UCP’s international conference this past April.  They include:

·       Michael Burke Jr., a co-founder and principal of Thrive Office, an innovative, shared workplace community based in New York City.

·       Ruth Gullerud, who retired in May as the Executive Director of UCP of West Central Wisconsin, in Eau Claire, where she has worked since 1977. 

·       Melvin “Chip” Hurley, an executive with Berkeley Research Group, LLC, and former chair of the board of UCP of Central Maryland.

·       Linda Maguire, co-founder and consultant with Maguire Associates, a research-based consulting firm that has served educational clients around the world for the past 29 years. She is currently the vice chair of UCP MetroBoston and has received much recognition for her work with the UCP network.

·       Rob White, the Chief Executive Officer of Cerebral Palsy Alliance in Sydney, Australia, who has decades of leadership experience in global civil rights movement for people with disabilities.

“We are grateful to these new officers and Trustees for agreeing to serve United Cerebral Palsy in such an important leadership role,” Bennett said.  “Our Trustees are one of the main reasons that UCP is able to serve hundreds of thousands of people with disabilities each year, and we are excited to begin a new year with their leadership contributions.”

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UCP APPLAUDS NATIONAL GOVERNORS ASSOCIATION FOCUS ON EMPLOYING PEOPLE LIVING WITH DISABILITIES

FOR IMMEDIATE RELEASE
 
CONTACT: 
Kaelan Richards: 202-973-7175, krichards@ucp.org
 

New NGA Chair announced year-long initiative at annual meeting

Washington, DC (July 16, 2012) – United Cerebral Palsy (UCP) issued the following response to the National Governors Association’s announcement of new Chair Delaware Governor Jack Markell’s initiative “A Better Bottom Line: Employing People with Disabilities.”

According to the NGA’s announcement, the initiative will aim to increase employment among individuals with disabilities and focus specifically on the intersection of government, businesses and individuals seeking gainful employment. The initiative will work to develop a “blueprint” for states and businesses to help both raise awareness and outline the best policies to increase employment of people living with disabilities. Business and Congressional leaders will collaborate on this initiative and help to determine best practices and policies.

United Cerebral Palsy provides comprehensive employment-related resources and information through its nearly 100 affiliates across the country, which support employment programs, assistance to job seekers with disabilities, and work with employers to improve the recruitment and retention of persons with disabilities in the workforce.

“United Cerebral Palsy is thrilled that the National Governors Association has chosen to highlight an issue that is so critical to Americans living with disabilities. Employment is a way for these individuals to be integrated in their communities and live their lives to the fullest while providing the business community with a workforce that is eager to participate, and yet only has a 20 percent employment rate,” said Stephen Bennett, President & CEO of United Cerebral Palsy. “By bringing together business and government, Governor Markell will be able to develop a blueprint for employment that both serves and benefits all involved. We look forward to this initiative’s work and its tremendous potential for positive change.”

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UCP Celebrates Health Care Law Decision

FOR IMMEDIATE RELEASE
 
CONTACT: 
Kaelan Richards: 202-973-7175, krichards@ucp.org
 

UCP CELEBRATES HEALTH CARE LAW DECISION


Leading disability organization praises Supreme Court decision and implications for people living with disabilities

 
Washington, DC (June 28, 2012) – United Cerebral Palsy (UCP) responded to the Supreme Court of the United States’ ruling on the Patient Protection and Affordable Care Act.
 

The Supreme Court’s ruling today affirms that the Affordable Care Act is the law of the land, and will ensure that Americans with pre-existing conditions will have access to the care they need. For individuals living with disabilities, it provides many critical benefits, most notably removing annual and lifetime caps on insurance coverage and expanding minimum benefits coverage to include more services and supports. The decision also maintains the Affordable Care Act’s expansion of Medicaid, enabling more Americans to have access to health care services, including individuals who need long-term care services.

“The Affordable Care Act has already made a significant difference in the lives of millions of Americans, including those living with disabilities. Today’s ruling is an affirmation that all Americans, and especially those living with disabilities, should have access to the care that they need. This decision means that individuals cannot be discriminated against because of a pre-existing condition— and for the disability community, affirms the definition of equality as set forth in the Americans with Disabilities Act,” said Stephen Bennett, UCP President & CEO. “Today’s decision is a clear victory for Americans living with disabilities. UCP strongly supports the Affordable Care Act and will keep working to ensure its implementation eliminates disparities and guarantees equality for all Americans.”

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About United Cerebral Palsy

United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

ABLE Happy Hour on Wednesday Supports Life Without Limits for People with Disabilities

MEDIA ADVISORY: Request for Coverage & Attendance  

ABLE PROGRAM & EVENT CONTACT:
Michael Piel: 202-973-7110, mpiel@ucp.org

MEDIA CONTACTS:
Lauren Cozzi: 202-973-7114 (direct), LCozzi@ucp.org
Alicia Kubert Smith: 202-973-7168 (direct), AKubertSmith@ucp.org  

ABLE happy hour on Wednesday supports life without limits for people with disabilities  

Raffle Prizes Include an iPad, Nats Tickets & Restaurant Vouchers  

Washington, DC (September 13, 2011) – ABLE, the young professionals network of United Cerebral Palsy (UCP), a leading service provider and advocate for children and adults with a spectrum of disabilities, will host the ABLE Young Professionals Network Inaugural Happy Hour, Wednesday, September 14, 6:00 – 8:00 p.m., Madhatter DC, 1319 Connecticut Ave. NW, Washington, DC.

  • WHO:       ABLE, the young professionals network of UCP  
  • WHEN:     Wednesday, September 14, 6:00 – 8:00 p.m.       
  • WHERE:   Madhatter DC, 1319 Connecticut Ave. NW, Washington, DC.
  • COST:      $10 donation

 

ABLE is a group of young professionals committed to supporting UCP. Members advance UCP’s mission to create a life without limits for people with a spectrum disabilities, and they find opportunities to increase education and awareness of disability issues. There are no membership fees; and, members are asked to support UCP in the following ways:

  • *volunteering at local affiliates and in the community;
  • *attending social events (happy hours, lecture series, etc.); and
  • *participating in fundraising opportunities.

ABLE offers young professionals in the Washington, DC area a chance to network with others who sharing the same passion, allowing them to become knowledgeable on the issues and gain valuable experience. Learn more at ucp.org/about/able.

About United Cerebral Palsy

United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. UCP and its nearly 100 affiliates advance the independence, productivity and full citizenship of people with a spectrum of disabilities by providing services and support to more than 176,000 children and adults every day—one person at a time, one family at a time. We work to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, we continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams for the next 60 years, and beyond. For more information, please visit www.ucp.org.  

 

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Statement of Values: The Supercommittee Must Engage in Debt Reduction—Not Opportunity Reduction

Stephen Bennett and Mark Perriello
Thursday, September 8, 2011

The debt reduction Supercommittee will hold its first meeting on September 8. As they prepare to start their work, Americans of every background and political orientation are looking to these 12 elected representatives to set aside political gamesmanship and produce a plan that reflects both our nation’s urgent needs and its core values. To accomplish this, the Supercommittee must preserve Medicaid, which provides millions of Americans with disabilities the tools to remain healthy and participate in our communities.

Like all Americans, people with disabilities—and our families and supporters—understand that this nation faces tough fiscal choices. Balancing our budget on the backs of Americans who are already living at the margins is not a viable choice. We stand ready to work with the Supercommittee to formulate a plan that reflects our American values of opportunity, fairness, and basic dignity for all.

 We believe:

  • In the deficit-reduction process, we must preserve Medicaid for the people whom it offers a vital lifeline.
     
  • The eight million Americans with disabilities who use Medicaid cannot be forgotten. They are brothers and sisters, neighbors, friends and community volunteers.
     
  • Medicaid provides many Americans the tools they need to participate fully in community life. Without Medicaid, many Americans would be forced to leave their homes and live in institutions—at greater expense to taxpayers.
     
  • Deficit reduction must not result in opportunity reduction for any American: our budget must preserve the critical health and long-term care initiatives that enable eight million persons with disabilities to remain healthy, participate in their communities and live up to their potential.
  • America can and must make good on its promise of opportunity for all. Abandoning people in these difficult economic times is tantamount to abandoning our belief in America’s promise of opportunity.
     
  • We cannot balance the budget on the backs of Americans who are living at the margins already: those now eligible to receive services must not lose the services on which they rely.
     
  • We can balance the budget by being smart and strategic—without denying basic human dignity to the Americans for whom Medicaid is working. We can and must look for cost savings by ensuring that initiatives are operating as efficiently as possible.
     
  • We must make every effort to reduce the costs of Medicaid without compromising the ability of recipients to live full and meaningful lives.
     
  • We must make every effort and maximize all available resources, including new technologies, to reduce the cost of Medicaid without impairing the quality of the services provided.
     
  • Given these important considerations, we are interested in working with policy makers on identifying productive ways to address our nation’s economic rebalancing.

 

We call upon the members of the Supercommittee to reduce our debt without compromising our values, and we welcome the opportunity to work with you on responsible, common-sense responses to our nation’s fiscal challenges.

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Stephen Bennett is President & CEO of United Cerebral Palsy

Mark Perriello is President & CEO of the American Association of People with Disabilities.

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Visit ucp.org/public-policy/america-s-super-committee for additional information.

Contacts:

Lauren Cozzi, 202-973-7114, LCozzi@ucp.org 
Alicia Kubert Smith, 202-973 7168, akubertsmith@ucp.org

STATEMENT FROM UNITED CEREBRAL PALSY IN RESPONSE TO PRESIDENT OBAMA’S STATEMENT

FOR IMMEDIATE RELEASE

UCP Contacts:
Lauren Cozzi, 202-973-7114, LCozzi@ucp.org 
Alicia Kubert Smith, 202-973 7168, akubertsmith@ucp.org

AAPD Contact:
Rebecca Panoff, 202-521-4307, rpanoff@aapd.com

 

PRESIDENT OBAMA PRAISED FOR STANDING UP FOR CHILDREN WITH DISABILITIES & FAMILIES DURING DEBT CEILING PRESS CONFERENCE

 Washington, D.C. – (July 15, 2011) – United Cerebral Palsy and the American Association of People with Disabilities applaud the President’s statement that debt and deficit reductions “DON’T REQUIRE US TO STOP HELPING FAMILIES WHO HAVE A DISABLED CHILD.”

Statement from United Cerebral Palsy President & CEO, Stephen Bennett, in response to above statement by President Obama:

We applaud the President for calling for solutions that preserve vital lifelines for people with disabilities and their families, who want to continue to contribute to the nation’s health and economic recovery. Gutting Medicaid is not the answer to our economic woes, and we thank all those on both sides of the aisle working to defend the most vulnerable in our country.

Statement from American Association of People with Disabilities President & CEO, Mark Perriello, in response to above statement by President Obama:

We commend President Obama for stating that the government doesn’t need to stop helping children with disabilities in order to balance the budget. Without Medicaid, many people with disabilities and their family members would be unable to work and would be forced take public assistance. Slashing Medicaid does not make economic sense and breaks our country’s promise of equal opportunity to its citizens.

President Obama’s statement during this morning’s press conference about debt and deficit reduction talks:

 

 

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

About The American Association of People with Disabilities (AAPD)
The American Association of People with Disabilities (AAPD), the country’s largest cross-disability membership association, organizes the disability community to be a powerful force for change – politically, economically, and socially.  AAPD was founded in 1995 to help unite the diverse community of people with disabilities, including their family, friends and supporters, and to be a national force for change in implementing the goals of the Americans with Disabilities Act (ADA). To learn more, visit the AAPD website: www.AAPD.com.

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