UCP at the “Margarita, With A Straw” NYC Screening!

On May 4, 2015, members of the staff at UCP National were invited to the New York City screening of the film “Margarita, With A Straw” at the Paris Theatre as part of the New York Indian Film Festival. The film centers around a young woman named Lila, a college student with Cerebral Palsy who is studying music. The film explores her desire to be loved and accepted for who she really is, while trying to navigate the world in her power chair. In the beginning of the movie, you see Lila in the mists of trying to win the affection of her band’s lead singer, Nima. After Nima rejects her advances, Lila learns that she has been admitted into New York University.


UCP and CPF (Cerebral Palsy Foundation) staff with lead actress, Kalki Koechlin (Lila).

Lila suddenly goes from her small college in New Delhi to the big streets of NYC. On her first week in the city, Lila happens upon a protest. During the protest, police begin to tear gas the crowd; this is where Lila meets Khanum. Lila and Khanum quickly begin a whirl-wind romance and are soon living together. Lila begins to come to grips with her sexuality, knowing that she will soon have to come out to her closest family member and her caretaker: her mother. Through a series of revelations, Lila’s family and relationship are turned upside down. Lila soon learns that she doesn’t need to seek validation from others, but in herself.

Sonali Bose_UCP

UCP with the film’s director, Shonali Bose.

After the movie, the film’s director, Shonali Bose, and its stars Kalki Koechlin (Lila) and Sayani Gupta (Khanum) talked about how they got into character and prepared for their roles. UCP had the opportunity to meet both Koechlin and Bose, take photos and discuss their thoughts and feelings on the film. For some of the staff at UCP National, three of which were born with Cerebral Palsy, this film was the first time they had really seen a portrayal that echoed parts of their own experiences on screen.

What sets “Margarita, With A Straw” apart from other films about Cerebral Palsy or disability, is the way you see Lila: She is not an underdog or a source of inspiration. She is just living her life, while trying to find her place in the world. As a viewer with or without a disability, you can identify with parts of Lila’s journey. This film gives viewers a look into the struggles that some face with a disability, because in the end, we all want to be loved and accepted for who we are.

UCP’s Summer Interns Soak In Affiliate Visit

by Kyle Khachadurian, External Affairs Intern, Kaitlyn Meuser, External Affairs Intern and Michael Wothe, Affiliate Services and Public Education Intern at UCP’s National Office


outside pathways academy

Recently, we took a trip to UCP of Central Pennsylvania (UCP of CPA) in order to get a taste of what an affiliate does and how it operates. The first thing we noticed is that UCP of CPA is huge! Working in UCP’s national office, we interact with people through referring them to their local UCP affiliates and/or other resources. Seeing, firsthand, an affiliate that treats the slogan “life without limits” in such a direct way refreshed all of us.

 [Left: Staff from UCP National and UCP of Central Pennsylvania at Pathways Academy]

The work going on at UCP of CPA is quite spectacular. We were able to visit several of their departments and programs: Pathways Academy, a residence for adults with disabilities that is fully equipped with SmartHome technology. The SmartHome technology consists of sensors on all of the windows, doors, and even chairs and beds to let the house staff know if any of the residents may have left and need assistance. 

interacting CACC kids 2

[Right: Interacting with children at the Capital Area Children’s Center]

Our next stop was at their Capital Area Children’s Center, which is a preschool for young children, ages six weeks to five years old, with and without disabilities. The school has 75% of its students without disabilities and 25% with a range of disabilities. Aside from various therapies, which happen in the classroom, the children with disabilities are taught the same things, at the same pace, as the children without disabilities– and it works. When we visited, a 4-year-old girl came up to us and said hello. She started telling us how she was graduating the following day. We later learned she was non-verbal when she began school there! It was absolutely incredible to be able to see the “real world” results from the programs at UCP of CPA.

The last stop on our UCP of CPA journey was at their Assistive Technology/Changing Hands Center. There, we seemingly saw every kind of assistive technology you could possibly think of, and several that you’d never think of, such as a button shaped like a face. There was also a pile of board games that were all in braille. After that, we saw the Changing Hands Center that was a sort of “exchange” for mobility aids and devices. If someone needs a type of device, he or she calls and asks for it. If UCP of CPA has one available, the device gets cleaned, and the person comes to pick it up free of charge. You can also donate old equipment that you no longer need to the Changing Hands Center.

AT includees games

[Left: Checking out board games in braille]

The striking thing about the work this UCP affiliate is doing is that their passion for what they are doing is apparent and absolutely infectious. It was great to see the positive impact technology can have on the lives of individuals with various disabilities, as well as the positive impact that early intervention and inclusion can have on young children — seen from the bright, smiling faces of the kids enrolled at UCP of CPA’s Children’s Center. Nearly all of the staff we met has a connection with cerebral palsy or other disabilities, be it a family member, friend or loved one. They treated us like we belonged there, and we truly felt welcomed. UCP of CPA is a shining example of the great work UCP affiliates are doing across the United States, in Canada, and Australia!