JOIN UCP IN CELEBRATING WORLD CEREBRAL PALSY DAY

FOR IMMEDIATE RELEASE

CONTACT: Kaelan Richards: 202-973-7175, krichards@ucp.org

JOIN UCP IN CELEBRATING WORLD CEREBRAL PALSY DAY 

Share your ideas and help to change the world for people with cerebral palsy and other disabilities

Washington, D.C. (October 2, 2013) – Do you have an idea that could change the world for the 17 million people around the globe living with cerebral palsy (CP)? Now’s your chance to submit your idea, and it may become reality.

To celebrate the second annual World Cerebral Palsy Day on Wednesday, October 2, people are being asked to suggest something that if developed, adapted or changed, would make life easier for people with CP and other disabilities. You can film or write your idea and submit it on the World CP Day website— the only requirement is that it takes one minute or less to watch or read, and be sure to vote for the ideas you think are best!

More than 260 ideas have already been submitted, ranging from a gym modified for people with disabilities to portable, lightweight ramps to increase accessibility for individuals in wheelchairs. Last year, a team that built a solar-powered wheelchair won the top prize. At the end of October, three ideas will be selected for the shortlist—and inventors, creators and hackers will have the chance to bring your ideas to life. The best creations will compete for a share of $50,000 in prize money.

With an estimated 17 million people around the world that have CP and another 350 million people that are closely connected to a child or adult with CP, there should be no shortage of ideas. UCP urges everyone who has cerebral palsy or any disability, or is connected to a child or adult with a disability, to think about the daily challenges they face, come up with ideas to solve them, and submit those ideas online.

“United Cerebral Palsy is thrilled to be celebrating the second annual World CP Day, and we hope that you will join us and our partners around the world as we work to change the world for people with cerebral palsy and other disabilities,” said Stephen Bennett, President and CEO of United Cerebral Palsy. “It’s easy to get involved by spreading the word, submitting your ideas and voting for the ideas you think will make a real difference for people— and maybe your idea will be chosen to be brought to life!”

To submit an idea, go to www.worldcpday.org through October 31.

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About United Cerebral Palsy

United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

UCP ON NEW DEPARTMENT OF LABOR RULE

FOR IMMEDIATE RELEASE

CONTACT: Kaelan Richards: 202-973-7175, krichards@ucp.org

UCP ON NEW DEPARTMENT OF LABOR RULE

Washington, DC (September 20, 2013) – United Cerebral Palsy (UCP) released the following statement in response to a final rule from the U.S. Department of Labor aimed at tightening the Fair Labor Standards Act by significantly narrowing the “companionship exemption” to give nationwide minimum wage and overtime protections for in-home, direct support caregivers.

“While we understand that the new rule from the Department of Labor is intended to ensure that direct support caregivers are being compensated fairly for their work, there are serious potential consequences to these changes for individuals with disabilities.  Many of the services that these caregivers provide are reimbursed by Medicaid—which in many states does not allow for overtime.  This new rule may limit the services and supports that can be provided to individuals with disabilities living in the community, and ultimately result in more people with disabilities winding up in costly institutions,” said Stephen Bennett, President and CEO of United Cerebral Palsy. “To avoid this unintended outcome, it is imperative that state Medicaid agencies take advantage of the delayed implementation of this rule to set reimbursement rates that will enable organizations like UCP to continue the in-home, community services and supports that people with disabilities need.”

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About United Cerebral Palsy

United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

UCP RESPONDS TO LONG TERM SERVICES AND SUPPORTS COMMISSION REPORT

FOR IMMEDIATE RELEASE

CONTACT: Kaelan Richards: 202-973-7175, krichards@ucp.org

UCP RESPONDS TO LONG TERM SERVICES AND SUPPORTS COMMISSION REPORT

Washington, DC (September 19, 2013) – United Cerebral Palsy (UCP) released the following statement in response to the Commission on Long-Term Care’s Final Report to Congress. 

There are currently an estimated 12 million Americans in need of long-term services and supports, and that number is expected to grow dramatically in the coming years. To address this growing need, the Community Living Assistance Services and Supports (CLASS) program was created— but unfortunately, it was repealed as part of the American Taxpayer Relief Act of 2012.

In its stead, the Commission was established to address the issues surrounding long-term care, specifically service delivery, the workforce requirements and financing, and required to produce a report within six months. The Final Report detailing their suggestions was approved by a vote of 9 to 6 on September 12, 2013. However, five of the commissioners who voted “no” released alternate recommendations that suggest financing long-term care through a social insurance program.  

“While we commend the Commission for finishing its work, no easy feat given the short amount of time available and magnitude of the challenges surrounding long-term care, we are disappointed that the Final Report does not address the most critical issue: financing. Any realistic, comprehensive solution to our country’s long-term care issues must address how it will be paid for—and this report fails to do so,” said Stephen Bennett, President and CEO of United Cerebral Palsy. “However, we must also recognize the recommendations made by the five commissioners who voted against the Final Report. Their proposal, to create a public insurance program that would supplement existing private insurance and family caregiver options, is a feasible starting point to addressing the long-term care crisis our country is facing and should be taken seriously. Overall, the actions of the Commission should serve as a stark reminder of how complex the challenges surrounding long-term are, and how urgent the need is to take action.”

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About United Cerebral Palsy

United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

2013 WORLD CEREBRAL PALSY CHALLENGE BEGINS TODAY!

FOR IMMEDIATE RELEASE

CONTACT: Kaelan Richards: 202-973-7175, krichards@ucp.org

2013 WORLD CEREBRAL PALSY CHALLENGE BEGINS TODAY!

More than 1,500 participants commit to 10,000 steps a day to raise awareness and support for people with CP and other disabilities

Washington, DC (September 4, 2013) – United Cerebral Palsy (UCP) announced the launch of the second annual World Cerebral Palsy (CP) Challenge today, an international health and fitness event to raise awareness and support for people with cerebral palsy and other disabilities.

The World CP Challenge is a month long campaign that encourages people to get active while supporting a great cause. Throughout September, more than 4,000 teams worldwide will challenge themselves to take 10,000 steps a day. Each of the steps—or bike rides, or yoga classes, or physical therapy sessions, as nearly any activity can be counted—will propel the teams up virtual mountains and track their progress. Teams can compare their progress against others from around the world, racing each other up the seven tallest mountains and spurring their efforts to new heights. And together, the teams will help to raise critical support for people with cerebral palsy and other disabilities.

Already, more than $50,000 has been raised in the U.S., and more than $500,000 internationally—but we still have a long way to go. Join the thousands of participants and World CP Challenge Ambassadors, Team Long Brothers, and help raise support for people with cerebral palsy and other disabilities today! Sign up is open through Wednesday, September 11. At the end of the month, the World CP Challenge will culminate on October 2 with World Cerebral Palsy Day, a global innovation project to change the world for people with cerebral palsy

“UCP is very excited to kick off the second annual World Cerebral Palsy Challenge! This month promises to be an incredible, worldwide effort to raise awareness and support for people with cerebral palsy and other disabilities. The World CP Challenge is such a great way for anyone, regardless of ability, to get involved and make a real difference for people with disabilities,” said Stephen Bennett, President and CEO of UCP. “We look forward to seeing each team’s progress throughout the month, and to finishing strong on World Cerebral Palsy Day on October 2. Good luck to everyone, and see you on the mountain!”

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About United Cerebral Palsy

United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

WORLD CP CHALLENGE ANNOUNCES TEAM LONG BROTHERS AS 2013 AMBASSADORS

FOR IMMEDIATE RELEASE

CONTACT: Kaelan Richards: 202-973-7175, krichards@ucp.org

WORLD CP CHALLENGE ANNOUNCES TEAM LONG BROTHERS AS 2013 AMBASSADORS 

Connor and Cayden, who has CP, compete as a team in triathlons 

Washington, DC (August 30, 2013) – United Cerebral Palsy (UCP) is thrilled to announce that the Team Long Brothers, Connor and Cayden Long, will serve as the 2013 World Cerebral Palsy (CP) Challenge Ambassadors.

Connor, 10, and Cayden, 7, compete in triathlons and were named the 2012 Sports Illustrated SportsKids of the year— but they are more than just an active pair of brothers. Cayden has spastic cerebral palsy, and cannot walk or speak. Connor pushes Cayden in a stroller, pulls him in a raft and tows him behind his bicycle in each race. And along the way, this amazing duo has shown that anything is possible with the love and support of their friends and family. 14 triathlons later, Team Long Brothers has truly embodied their motto to “Keeping Rolling!”

Team Long Brothers’ next competition is the World CP Challenge, four-week event to raise awareness and support for people with cerebral palsy and other disabilities. Beginning on September 4, teams from around the world will challenge themselves to take 10,000 steps a day— and nearly any activity, including biking, physical therapy and yoga, can be converted into steps on the World CP Challenge website. Last year, nearly 7,000 people worldwide participated in the challenge and raised an incredible $774,399. Team Long Brothers is committed to helping make this year an even bigger success!

“Our family is so honored to see the boys as the ambassadors for the Challenge, we hope that other families will see the importance of being active and healthy as much as we do, and the great thing about this challenge is anyone can take part and it will help families and individuals living with the everyday challenges of Cerebral palsy,” said the Long family. “So always remember to Keep Rolling!!”

“We are thrilled to have Team Long Brothers as ambassadors for the World CP Challenge. Their story shows that, with the support they need, anything is possible for people with disabilities,” said Stephen Bennett, President and CEO of UCP. “Connor and Cayden are an inspiration, and we look forward to watching their progress throughout the month—and hope we can keep up!”

For more information about the Long Brothers and their story, please visit their website,www.teamlongbrothers.org.

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About United Cerebral Palsy

United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

UCP OF GREATER CHICAGO, SEGUIN SERVICES TO MERGE

CONTACT:

Kaelan Richards: 202-973-7175, krichards@ucp.org

 

UCP OF GREATER CHICAGO, SEGUIN SERVICES TO MERGE 

Local adults and children with disabilities will have more access to services and supports

Washington, D.C. (June 4, 2013) – United Cerebral Palsy (UCP) is pleased to announce that one of its affiliates, UCP of Greater Chicago, and Seguin Services are merging to create one non-profit organization dedicated to serving people with disabilities: UCP-Seguin of Greater Chicago.

For the past three years, UCP of Greater Chicago and Seguin Services have worked together in a collaborative relationship to provide the best supports and services to people with disabilities in the Chicago area. The merger, effective as of July 1, 2013, will make a wider range of services and programs available, particularly in the areas of technology and family support.

John Voit, President and CEO of Seguin, will become president of UCP-Seguin of Greater Chicago. Paul Dulle, PhD, President and CEO of UCP of Greater Chicago, will continue to be involved, providing ongoing consultation and becoming chairman of a new foundation under consideration by both organizations. UCP of Greater Chicago and Seguin plan to maintain their current staff and facilities.

“The entire UCP family is excited about this merger and how it will benefit the Chicago community. Both UCP of Greater Chicago and Seguin have provided excellent services and supports for years, and together they will be able to do even more to ensure a life without limits for people with disabilities,” said Stephen Bennett, President and CEO of UCP. “This merger is a smart, forward-thinking move that will expand and enhance the good work already being done, and we look forward to all of its positive impacts.”

“From our first collaboration, we recognized a natural synergy between our organizations and saw many potential advantages to joining forces,” said Dulle. “This merger is a win‐win for both teams and especially for the population we serve with advanced technologies, family support, as well as programs and services.”

“This merger will position the combined organizations for considerable growth, enabling us to offer a broader scope of services and enhanced programs to children and adults with disabilities,” said John Voit, President and CEO of Seguin. “Because we serve similar populations, we anticipate achieving this growth while reducing overall costs.”

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About United Cerebral Palsy

United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

About UCP of Greater Chicago

United Cerebral Palsy Association of Greater Chicago (UCP) is a nonprofit human services agency. UCP Chicago’s mission is to advance the independence of people with disabilities, enrich their lives, provide support to their families, and advocate for their inclusion in every facet of community life. For more information visit www.ucpnet.org.

About Seguin Services

Seguin Services is a charitable not‐for‐profit agency serving metropolitan Chicago, always striving to integrate, enrich, and empower people with disabilities. Seguin creates job opportunities and housing options that lead to greater independence, so that men and women with developmental disabilities can live, work, and socialize as their neighbors do. In addition, Seguin provides safe and loving homes for children who have disabilities and serious medical or emotional conditions. For more information visit www.seguin.org

UCP ELECTS SEVEN TO BOARD OF TRUSTEES

FOR IMMEDIATE RELEASE

CONTACT:
Kaelan Richards: 202-973-7175, krichards@ucp.org

 

UCP ELECTS SEVEN TO BOARD OF TRUSTEES

Individuals bring diversity of experience and knowledge to continuing efforts to ensure a life without limits for people with disabilities 

 

Washington, D.C. (May 20, 2013) – United Cerebral Palsy (UCP) elected seven members to its Board of Trustees during its 2013 International Conference in San Diego, CA last month.

“We are extremely grateful to all members of our Board of Trustees for their passion for UCP’s mission and their commitment to the people we serve,” said Stephen Bennett, President & CEO of UCP, in announcing the selection of Trustees.      

The newly elected members of UCP’s Board of Trustees are listed below. To view the complete list, please visit ucp.org/about/board.

Actress, Producer and Director Cheryl Hines is a two‐time Emmy nominee for her role as Cheryl David on HBO’s Golden Globe Award‐winning series Curb Your Enthusiasm, the brainchild of Seinfeld co‐creator Larry David. Hines can currently be seen starring in the hit ABC comedy series Suburgatory opposite Jeremy Sisto and Jane Levy.

Last year, Hines filmed a co‐starring role in the feature film PASADENA, produced by Midway Films. Hines co‐stars opposite Peter Bogdanovich and Alicia Witt. Hines’s feature film directorial debut, Serious Moonlight was released through Magnolia Films two years ago. The film premiered with critical acclaim at the Tribeca Film Festival. The late Adrienne Shelly, who directed Hines in the critically acclaimed Waitress, wrote the screenplay.

Hines’s additional television projects included a co‐starring role in the live action/CG adaptation of the Nickelodeon hit animated series The Fairly Odd Parents and television movie A Fairly Odd Movie: Grow Up, Timmy Turner! opposite Jason Alexander. She had major story arc on the ABC drama series Brothers and Sisters and a starring role opposite Megan Mullally in the ABC Television Network series In the Motherhood, a single camera comedy series chronicling the hilarious ups and downs of motherhood.

Hines has also produced and directed several television projects including Executive Producer and creator of the NBC television series School Pride, a proactive, alternative series that told the stories of communities coming together to renovate their aging and broken public schools. She also produced the award‐winning comedy series Campus Ladies for the Oxygen Channel and the Starz Networks original comedy series Hollywood Residential.

Hines is one of Hollywood’s busiest film actresses with starring roles in a number of critically acclaimed feature films and box office hits including The Ugly Truth, RVWaitressThe Grand and Bart Got A Room.

Hines previously served on the Board of Trustees of UCP from 2006 – 2012, and has been tireless in her support for the individuals whom UCP’s affiliates serve.

 

Pamela Talkin was sworn in on July 16, 2001 as the tenth Marshal of the Supreme Court of the United States and is the first woman to hold the position.

Talkin came to the Court after six years as the first Deputy Executive Director of the Office of Compliance, the independent regulatory agency created by the Congressional Accountability Act of 1995, which applied eleven of the nation’s labor and employment laws to Congress. There, she promulgated procedures and regulations for the application of the laws, managed all operations of the Office, and acted as liaison between the Office and Congressional members, committees, and legislative branch agencies including the Architect of the Capitol, the Capitol Police, and the Congressional Budget Office. Talkin also served as President of the international Association of Labor Relations Agencies.

From 1989 to 1995, Talkin was a Presidentially‐appointed, Senate‐confirmed member of the Federal Labor Relations Authority. Previously, Talkin was the Chief of Staff at the U.S. Equal Employment Opportunity Commission, and Assistant Regional Director of the National Labor Relations Board’s San Francisco Region (Northern California and Hawaii). Talkin was also the National President of the NLRB Union, which represented over 2,000 professional and clerical employees.

Talkin began her career as a Spanish teacher and guidance counselor in New York City high schools. She earned her bachelor’s and master’s degrees in Spanish from the City University of New York at Brooklyn College. She has done postgraduate work at the City University of New York and at Harvard University’s John F. Kennedy School of Government. She has been re-elected to a new three-year term.

 

Gloria JohnsonCusack is the Executive Director of Leadership 18, an alliance of Chief Executive Officers responsible for leading some of the country’s largest and most well respected charities, non‐profits, and faith‐based organizations.

Johnson‐Cusack brings more than 20 years of management, political and strategic communications expertise informed by leadership positions in the private sector, U.S. Congress, national presidential campaigns, municipal and federal government, and the White House.

Johnson‐Cusack previously served as Senior Vice President at GMMB, a D.C.‐based strategic communications and advertising firm focused on cause marketing. In this role, she advanced issues on behalf of key nonprofit organizations and foundations.

In the public affairs arena, Johnson‐Cusack served as Director of the Office of Congressional Relations at the Peace Corps, Special Assistant to the President in the White House Office of National Service, and Director of Constituent Relations at the Corporation for National Service. She was Chief of Staff for the D.C. Office of the Inspector General and was policy advisor to Congresswoman Eleanor Holmes Norton and Senator Albert Gore, Jr.

Johnson‐Cusack holds a bachelor’s degree from Columbia College, Columbia University and a master’s degree in public administration from the Key Executive Management Program at American University. She is a founder of the Eli J. Segal Citizen Leadership program at Brandeis University, media trainer, church lay leader and breast cancer survivor and advocate. She is married with one adult daughter. She has been re-elected to a new three-year term.

 

Christobel Selecky is a chief executive and entrepreneur with nearly 30 years experience in the health care industry. She currently provides strategic consulting and advice to management teams, companies, and investors currently in or seeking to enter the healthcare field focusing on strategy and business plan development, disease and care management program development and assessment, sales and market positioning, product planning, public policy analysis and strategy, and CEO/Senior Management advising. She also serves on the Board of Directors of National Healthcare Services, the venture capital arm of Memorial Healthcare Services, a preeminent, non-profit healthcare system located in Southern California.

Selecky most recently served as President, CEO, Chairman, and member of the Board of Directors of LifeMasters Supported SelfCare, which she led from 1996 until 2009. Under her leadership, LifeMasters raised more than $60 million in venture capital, grew to $130 million in annual revenues, employed more than 1,200 people in seven locations, provided care and disease management and health improvement services to more than 1 million program participants nationwide, won numerous industry awards, and counted some of the largest and most well‐respected health plans, employers, provider groups, labor unions, and government entities as its clients.

A veteran in the field of managed health care, her career began at FHP International Corporation, an entrepreneurial, privately held staff‐model HMO. While at FHP, Selecky saw the company through its conversion, public offering and rapid expansion. She has also served on the boards of both the California and New Mexico HMO Associations and The Medical Quality Commission.

Selecky received a master’s degree in public communication from the S.I. Newhouse School of Communications at Syracuse University and a B.A. with high honors in Political Science and Philosophy from the University of Delaware. She has been re-elected to a new three-year term.

 

Eric Hespenheide is a senior partner at Deloitte & Touche LLP with over 25 years of distinguished leadership and client service experience. He serves as the Global Leader of the Deloitte Touche Tohmatsu (DTT) member firms’ Corporate Responsibility & Sustainability Services Group and managing partner of the global Internal Audit Practice.

Hespenheide is leading efforts in marketplace research, coordinating an integrated service offering and helping clients solve complex challenges with sustainability programs. His leadership has led to significant growth, resulting in the practice being widely recognized as a leading provider of internal audit services among Fortune 1000 companies. In addition, he currently serves as the Lead Partner or Advisory Partner on a number of global engagements in a variety of industries.

Hespenheide joined the Detroit practice of Deloitte & Touche LLP in 1977 and was named global managing partner of Internal Audit Services in 2001. Prior to 2001, he served as the Assurance and Advisory managing partner for the Great Lakes Region and as an audit partner for large global manufacturing companies.

He is a member of the American Institute of Certified Public Accountants and the Michigan Association of Certified Public Accountants. Hespenheide has twice served on the Board of the United Cerebral Palsy, chairing the finance, audit and nominating committees. Hespenheide was recently elected to the Board of Directors of the Cerebral Palsy International Research Foundation. Hespenheide also serves on the Dean’s Advisory Council at Louisiana State University, and has been actively involved in working with the Institute of Internal Auditors since 2001, serving as a board trustee for the IIA’s Research Foundation. He is a frequent speaker on the topic of internal auditing at various forums around the world.

 

Ian C. Ridlon is General Counsel and Director of Legal Services at the Rhode Island Interlocal Risk Management Trust. Prior to joining The Trust, Ridlon was in private practice with a large national law firm where he engaged in insurance defense work, commercial and environmental litigation, and labor and employment work. He also successfully appealed the termination of benefits to children with developmental disabilities in a precedent setting matter before the Vermont Supreme Court.

Ridlon has been involved with United Cerebral Palsy on the state and national level for more than 15 years. On the state level, he has been the Board Chair for several terms and has also chaired two other non‐profit organizations created by the affiliate that provide independent living facilities for low income individuals with developmental disabilities.

On the national level, he has previously served on the Board of Trustees and is a recipient of the 2004 Chairperson’s Award. He has also served on numerous committees and was previously the chair of the nominating committee and the by‐laws committee.

Ridlon is a graduate of Bowdoin College and Vermont Law School. He currently resides in Rhode Island with his wife, Patty, and his three boys, Conor, Brendan, and Aiden. He has been re-elected to a new three-year term.

 

Dr. James T. Bennett graduated from Tulane School of Engineering and Tulane Medical School. A New Orleans native, he maintains his relationship with Tulane Engineering as a member of the Advisory Board for BME curriculum. His orthopaedic residency was at the University of North Carolina, AI DuPont Institute and a Fellowship at Scottish Rite Hospital in Atlanta.

Bennett’s interest in computer assisted navigation stems from former Chairman of Tulane Orthopaedics Dr. Tom Whitecloud’s work in developing Stealth navigation. Bennett’s practice is primarily scoliosis although he maintains his interest in Pediatric Orthopedics in general. Bennett has been re-elected to a new three-year term.

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About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

REGISTER TODAY FOR THE 2013 WORLD CP CHALLENGE

FOR IMMEDIATE RELEASE

CONTACT:

Kaelan Richards: 202-973-7175, krichards@ucp.org

 

REGISTER TODAY FOR THE 2013 WORLD CP CHALLENGE 

4-week health and wellness activity raises support for people with disabilities

Washington, D.C. (May 16, 2013) – United Cerebral Palsy (UCP) is pleased to announce that the registration for the 2013 World Cerebral Palsy Challenge is now open.  Register today to join an international competition for good!

UCP launched the World CP Challenge in September 2012 in an effort to provide an accessible health and wellness activity that is proven to promote healthy living and change participants’ health and fitness habits, all while raising awareness and crucial funds for direct services and research for people with cerebral palsy and other disabilities. Cerebral palsy is a permanent disability resulting from damage to the developing brain, usually before birth. CP is the largest cause of physical disability in children; each year, approximately 10,000 infants in the United States will develop cerebral palsy.

World CP Challenge participants form teams of four and challenge themselves to take 10,000 steps a day, everyday, from September 4 through October 2. Throughout the Challenge, participants log their daily steps online, climbing virtual mountains around the world with each step and receiving weekly fitness tips and healthy recipes. And the ‘steps’ can be any activity—the World CP Challenge is unique in that it enables everyone to be active in their own way with the option to convert more than 40 activities, such as yoga or swimming, into steps. The option to convert almost any activity into steps makes the World CP Challenge available to people of all abilities. Throughout the Challenge, participants can fundraise, with all proceeds supporting services to people with disabilities and cerebral palsy research.

This year, the World CP Challenge will held in Australia, Canada, the United Kingdom and the Netherlands. In these countries, the event is known as “Steptember.”

The World CP Challenge is not only a great opportunity for individuals, but for corporations and organizations as well. The Challenge serves as an employee engagement activity, increases productivity and reduces sick days among company employees. Participating companies can have employees compete amongst themselves, as well against other organizations to see who can reach the top of each mountain first.

“UCP and our international partners are thrilled to announce that registration for the 2013 World CP Challenge is now open—and we encourage everyone to check out our website, learn more about the Challenge and sign up! The World CP Challenge is a fun and exciting way to get active, compete against other teams and help to raise support for people with disabilities around the world,” said Stephen Bennett, President & CEO of United Cerebral Palsy. “It truly is an international effort to bring people together in support of a great cause. We hope you will join us, and see you on the mountain!”

To learn more about the Challenge, please visit our website, www.worldcpchallenge.org, or contact Sarah Abram at sabram@ucp.org.

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About United Cerebral Palsy

United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

UCP ANNOUNCES UNIVERSITY OF VIRGINIA AS WINNER OF WORLD CP DAY INVENTION CONTEST

FOR IMMEDIATE RELEASE

CONTACT:
Kaelan Richards: 202-973-7175, krichards@ucp.org

 

UCP ANNOUNCES UNIVERSITY OF VIRGINIA AS WINNER OF WORLD CP DAY INVENTION CONTEST 

Team designs solar-powered wheelchair, awarded 1st prize of $20,000

Donates chair to man who submitted idea, funds to help advance World CP Day

Washington, D.C. (May 10, 2013) – United Cerebral Palsy (UCP) and its international partners have announced the winner of the first annual World CP Day invention contest: a team from the University of Virginia, who created a solar-powered wheelchair.

World CP Day was established in 2012 as a way to raise awareness and support for people living with cerebral palsy around the world. Through the “Change My World In One Minute” contest, people can submit ideas for something that would make a real difference in the lives of people with cerebral palsy—and an incredible 473 ideas were submitted. From these, three final ideas were selected: a fold-up motorized wheelchair, a documentary on cerebral palsy in the 21st century and a solar-powered wheelchair. The public was then invited to submit proposals for a chance to win $25,000 and to bring their ideas to life.

The team from the University of Virginia, led by Dr. Mool Gupta, included six students: Dennis Waldron, Duncan McGillivray, Craig Ungaro, Ankit Shah, Maria Michael and Kyung Kim, and was primarily constructed at the National Institute of Aerospace’s Research and Innovation Laboratories Facility. The concept for the wheelchair was inspired by the design of retractable roofs on convertible cars and utilizes lightweight yet robust materials with high efficiency solar cells. This innovative combination enables the wheelchair to increase its range by more than 40 percent over battery usage, and to run a one mile per hour indefinitely without consuming any battery charge. Operated by a single switch, the wheelchair includes standard components as well as USB power outlets. 

Awarded $20,000 for their first prize invention, Dr. Gupta and his students decided to use the prize money to refine and ship the wheelchair to the man who posted the suggestion online, Alper Sirvan, who has cerebral palsy, and donate the remaining proceeds back to UCP to help advance World CP Day in the years to come. 

“UCP is thrilled to present this award to the University of Virginia for their creation of a solar powered wheelchair as part of the first World Cerebral Palsy Day’s Change My Life in One Minute invention contest, which focused on concrete, attainable ideas that could change people’s lives. We are very proud to say that, together with the incredible efforts of the University of Virginia, Dr. Gupta, and all of the students and partners involved, one of these ideas has been brought to life,” said Stephen Bennett, President and CEO of United Cerebral Palsy. “And it is truly inspiring to hear of the University of Virginia’s decision to use the prize money to send the wheelchair to the man who inspired the idea and return the remaining funds. I applaud these extraordinary individuals for their work, and appreciate their efforts in helping to ensure that people living with cerebral palsy can live their lives to the fullest.”

“This team of graduate and undergraduate students have created a device that will truly benefit those with disabilities,” Engineering School Dean James H. Aylor said. “The students on the team are excellent examples of the type of engineer we strive to produce in the U.Va. Engineering School – innovative leaders who are agents of change in society. I am thankful for the World CP Day organization for giving them this opportunity and for the National Institute of Aerospace for providing laboratory space.”

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About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

About the World CP Day Campaign:
World Cerebral Palsy Day is an innovative way for 17 million people with CP to tell the world what they need to make their lives better and it’s a way to turn some of those ideas into reality. World CP Day was piloted in 2012. From 1 August, people with cerebral palsy, their families and friends posted ideas online for something that could be created, developed or modified that would change the world for someone with cerebral palsy. Ideas were posted as text or video. Each idea needed to take only 1 minute to read or watch. From World CP Day, September 4, people were encouraged to go online, review the ideas and vote for the concepts that could have the greatest impact on people’s lives. At the end of September, the World Cerebral Palsy Day Panel reviewed the ideas and public votes. Three ideas were shortlisted for development. Social activists, researchers, inventors, and innovators were then invited to turn the shortlisted ideas into reality. They competed for a total prize pool of $25,000. The winner was announced on April 27, 013.

World CP Day partners include organizations from America, Australia, Austria, Azerbaijan, Bangladesh, Bulgaria, Canada, China, Croatia, Finland, Germany, India, Indonesia, Ireland, Netherlands, New Zealand, Niger, Panama, Poland, Portugal, Scotland, Singapore, Slovenia, Sri Lanka, South Africa, St Lucia, Sweden, Turkey and the UK.

UCP HONORS EDWARD R. MATTHEWS WITH LEADERSHIP AWARD

FOR IMMEDIATE RELEASE

CONTACT:

Kaelan Richards: 202-973-7175, krichards@ucp.org

 

UCP HONORS EDWARD R. MATTHEWS WITH LEADERSHIP AWARD 

Maul Award Recognizes Exceptional CEOs at United Cerebral Palsy

Washington, DC (May 2, 2013) – United Cerebral Palsy (UCP) is pleased to announce that the 2013 Kathleen O. Maul Leadership Award has been awarded to Edward R. Matthews, Chief Executive Officer of UCP of New York City.

The Kathleen O. Maul Leadership Award is presented to an exceptional chief executive of a UCP affiliate in memory of Kathy Maul, a remarkable executive director at UCP of Suffolk who died young and left a legacy of leadership ability and strong commitment to UCP. It was presented as part of UCP’s Awards for Excellence, which are given annually to UCP affiliates, individuals and companies whose exceptional activities, achievements and dedication exemplify the UCP mission to educate, advocate and provides support services to ensure a life without limits for people with a spectrum of disabilities.

Matthews recognized the 2013 honor for his dedication and long history working to improve the services and supports provided to people with disabilities, including: part of the Medicaid Redesign Team, responsible for overhauling New York State’s massive Medicaid system; serving on the Steering Committee to implement the People First Waiver, a partnership between New York State and the federal government to reconstruct the Medicaid funding system for New York’s citizens with developmental disabilities, to provide them greater choice and access and reduce costs; leading the InterAgency Council (IAC) in New York City, a coordinating body and trade association consisting of over 150 agencies providing services for people with developmental disabilities; and serving as CEO of UCP of NYC since 1989, during which the affiliate has grown to a budget size of over 107 million and provides services to more than 14,000 children, adults and their families throughout New York City.

“I am so pleased to honor Ed Matthews with the 2013 Kathleen O. Maul Leadership Award for his extraordinary efforts to make a difference in the lives of people with disabilities,” said Stephen Bennett, President and CEO of UCP. “For more than 20 years, Ed has served as the CEO of UCP of New York City, leading and growing that affiliate into one of the strongest in the country—and a shining example of UCP’s mission to advance the independence, productivity and full citizenship of people with a spectrum of disabilities. Congratulations Ed, and we look forward to your continued successes.”

“The Kathy Maul Award is very meaningfully personally and professionally. To me, it represents the values that Kathy & UCP have always stood for,” said Ed Matthews, CEO of UCP of New York City. “I am honored to join my distinguished friends and colleagues who have been recipients.”

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About United Cerebral Palsy

United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.