Support is very important to a family’s mental and physical health as well as its ability to cope. That goes double for individuals and families with disabilities, where support then becomes a critical issue. Families with disabilities are not just dealing with young children with disabilities. It affects people of all ages and all members of the family. As baby-boomers age, families may be dealing with cross-generational support issues.
Family Support Links
A national network of state based programs aimed at achieving family-centered care for children and young adults with disabilities and health care needs. Provides families with the tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.
Parent to Parent
A national network that provides emotional and informational support to families of children with disabilities.
A global community that collects information over the Internet for people with disabilities, their caregivers and their community, including resources on adaptive technology, recreation, and related media and literature.
Directory of Parent Information Centers
Complete list of Parent Training and Information Centers and Community Parent Resource Centers by State. Parent Centers serve families of children ages birth to 26 with all disabilities and provide a variety of services including one-to-one support and assistance, workshops, publications, and websites. The majority of Parent Center staff members and board members are parents of children with disabilities so they are able to bring personal experience, expertise, and empathy when working with families.
Other Helpful Resources
The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters (siblings) of people with special health needs.
Military Family Support Program
The Exceptional Family Member Program supports military families who have members with special needs. These include spouses, children, or dependent parents who require special medical or educational services. Includes the Military Family Support Parent Toolkit that has comprehensive information and tools geared towards helping military families with special needs children navigate the maze of medical and special education services, community support and benefits and entitlements.