UCP Applauds the Decision to Release Rosa Maria Hernandez into the Custody of Her Family

UCP applauds the decision from the Department of Health and Human Services to release Rosa Maria Hernandez, a 10 year-old girl with Cerebral Palsy held in federal custody by immigration authorities, to her family on November 4th. Rosa Maria was stopped at border checkpoint on her way to emergency gallbladder surgery on October 24th in Corpus Christi, TX. She was then held in custody at the Office of Refugee Resettlement in a facility for children in San Antonio, TX. Rosa Maria was brought to the United States at 3 months old by her parents, and has remained in their care since. According to news reports, Rosa Maria was released on Friday into the custody of her parents. Her release comes after a lawsuit lead by the American Civil Liberties Union (ACLU) against the U.S. government to have her reunited with her family.

For people with disabilities and their families, having access to medical care and support networks, especially in the case of complex medical needs is vital. We are happy and thankful to know that Rosa Maria can be with her family to heal, recover, and get the care that she needs.

UCP Welcomes United Community Options of South Florida to the UCP Affiliate Network

UCP would like to welcome United Community Options of South Florida (formerly known as UCP of South Florida) to the UCP Affiliate ​Network! United Community Options of South Florida was formed in 1947 by a group of parents in Miami who came together to look for services for their children with cerebral palsy.

United Community Options of South Florida oversees UCO of Miami, UCO of Broward, Palm Beach and Mid Coast Counties and Miami Cerebral Palsy Residential Services Inc.  United Community Options of South Florida provides a wide variety of supports and services including programs for adults and children with disabilities as well as typically developing children and adolescents. Programs provided include: Schools (private, charter, summer, afterschool), Residential services (group homes and ICF/IID), Supported Living, Supported Employment, Adult Day Services, Therapies, and much more.

In 2016, the organization formally became United Community Options of South Florida. We are proud to welcome back as an affiliate the rich heritage of UCO and their roots in UCP.

UCP Expresses Concern On The Detainment of Rosa Maria Hernandez

 

FOR IMMEDIATE RELEASE

UNITED CEREBRAL PALSY EXPRESSES CONCERN ON THE DETAINMENT OF ROSA MARIA HERNANDEZ

For Inquires: Kaitlyn Meuser, kmeuser@ucp.org, (202)-973-7185

Armando Contreras, President and CEO, acontreras@ucp.org

Washington, D.C. (October 27, 2017) — United Cerebral Palsy (UCP) would like to express substantial concerns about the condition and treatment of Rosa Maria Hernandez, a 10-year-old girl with Cerebral Palsy, who was detained by federal immigration authorities on the way to emergency gall bladder surgery in Corpus Christi, Texas. After discharge from the hospital, authorities placed her in a facility for undocumented children in San Antonio. Various news outlets note that her doctors have recommended that she be released to family members who can care for her.

We strongly urge authorities to allow this young girl with Cerebral Palsy to be with her family and receive needed care so that she can fully recover from her surgery. Children with disabilities are among society’s most vulnerable and often have challenging health care and social support needs. UCP believes in providing those children with appropriate and high-quality care to address emergencies, help manage complex conditions and ongoing needs, and ensure a positive quality of life – a “life without limits.”

In this case, immigration-related issues have presented barriers to the child’s care, and we hope that authorities find a way to ensure she does not remain separated from her family and with compromised access to health care needed for her recovery.  Furthermore, as policymakers in Congress and the Administration consider approaches to address immigration-related issues, including those related to the immigration status of children, we urge them to take into account the complex health care needs of special needs children like Rosa Maria and the potential situations like this one that could arise.

Through our nearly 70-member strong affiliate network across the United States and Canada, UCP’s affiliates help to provide a variety of services and supports to people with disabilities and their families who come from a wide range of backgrounds and communities.

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About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 70 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

UCP Seguin Enterprises: Creating Opportunity and A Space in the Community

Special thanks to Julie Lerch, Senior Director of Seguin Enterprises, for her assistance in contributing to this blog!

October is National Disability Employment Awareness MonthOur affiliate in the Chicago area, UCP Seguin of Greater Chicago, has worked to help provide job training for people with disabilities through two of it’s unique enterprises, Seguin Garden and Gifts and Seguin Auto Center.

UCP’s national office recently caught up with Julie Lerch, Senior Director of Seguin Enterprises, to learn more about their history and the impact of employment for people with disabilities.

The welcome sign for Seguin Auto Center.

Seguin Auto Center

Seguin Auto Center began as a small crew washing the vehicles in parking lot in April 2004 and grew into a full detailing and car wash service. Built solely through donations and the help of the community, Seguin Auto Center provides a range of services, which includes full vehicle detailing and hand car washes. In addition to the services provided at the Auto Center, they also own a used car lot. Though the amount of cars for sale to the community varies, each of the vehicles available for purchase were secured through donations. Seguin Auto Center also works with various nonprofits in the Chicago metro area, helping to administer their vehicle donation programs. This can include processing donations, cleaning up those that are suitable for selling on the Seguin Auto Center used car lot, and recycling the cars that are not able to be sold. Once the vehicle is sold or recycled, Seguin Auto Center sends a check to the non-profit partner for the proceeds of the donation. According to Julie, this is a win-win for both the nonprofit partner and Seguin Auto Center.

Employees at Seguin Autocenter washing a car.

The lot sells more than just cars. Starting in April and running through Thanksgiving, the Seguin Auto Center hosts a market every Saturday & Sunday. Vendors rent a space for $13 to $18, and sell a wide range of items, from housewares to clothing, pretty much whatever they like. It also creates a wonderful opportunity to engage the community with UCP Seguin and for the vendors to earn income and promote the items that they have for sale. 

Seguin Garden and Gifts

A display for “UCPSeguinMade” ceramics.

In addition to Seguin Auto Center, UCP Seguin also runs Seguin Garden & Gifts. Seguin Garden and Gifts came about from a successful Horticulture therapy program and a growing lawn and landscaping crew that maintained the lawns at the UCP Seguin CILA homes, in addition to a small, off-site craft store.

Seguin Garden and Gifts features a 4,000 square foot greenhouse and 2,000 square feet of retail space. Construction on the space began in 2007. The greenhouse offers a variety of edibles, annuals, perennials and houseplants, depending on the season. “UCPSeguinGrown,” a line of organically grown vegetables and herbs are available in the Spring, all grown by participants. The retail side features gardening merchandise, home decor, holiday items, and features a section of “UCPSeguinMade” ceramics, jewelry, cards, and plants.

Both Seguin Garden and Gifts and Seguin Auto Center offer competitive employment for people with disabilities with varying needs and supports. They help to provide employment training and life skills, and currently have 87 employees who have worked over a total of 18,000 hours.

Planting in the garden. 

Find out more about UCP Seguin of Greater Chicago’s Enterprises by going here.

For more information on employment and people with disabilities, check out our Facts About Employment Blog.

Share Your Photos for UCP’s “Halloween Without Limits!”

It’s time for UCP’s “Halloween Without Limits.” From now until October 31st, share your most creative costume photos and show us how you celebrate a “Halloween Without Limits”! We want to see your style and how you make Halloween your own!

UCP’s “Halloween Without Limits” is open to all ages, children and adults alike, who get into the Halloween spirit. We invite parents and individuals with disabilities to share their most creative, kooky, and fun costumes to our Facebook page by tagging @UnitedCerebralPalsy and using the hashtag #HalloweenWithoutLimits!

It doesn’t matter if you’re a princess or a hero, a ghost or a ghoul, as long as you have gone the extra mile to accommodate a disability.

Photos of children under the age of 18 MUST be submitted by a parent or guardian. Or you must have the permission of the parent of guardian of the child in the photo for submission. 

The rules are simple:

All you have to do is post your photos to UCP’s Facebook page using #HalloweenWithoutLimits so we can all see them!

Check out photos from last year!

We can’t wait to see your photos!

UCP Expresses Concerns About Graham-Cassidy Legislation



As Members of Congress continue to discuss ways to improve the healthcare system in bipartisan hearings, United Cerebral Palsy expresses concerns about the Graham-Cassidy legislation being considered by some Senate Republicans.


The health care needs of individuals living with cerebral palsy and people with other forms of disability are complex, intensive, and diverse. Providers in the UCP affiliate network bring substantial value to the health care system through their approaches to the care of individuals with disabilities, including by offering important services in partnership with state Medicaid programs. Their innovative service models and practices, research, and use of technology have significantly improved access, community integration, and long-term outcomes for 176,000 clients served nationwide.

Capping and reducing spending for Medicaid, a primary source of funding for disability health services, could compromise needed care such as habilitation and rehabilitation services and also affect the ability of individuals with disabilities to thrive in their communities, including through greater use of long-term services and supports (LTSS). More broadly, such action undermines the innovation in care delivery that ensures that we all live lives without limits. And, this does not sustain the vision that forged United Cerebral Palsy back in 1949 as an organization dedicated to finding better alternatives to institutionalization for children living with cerebral palsy.

In the days ahead, we will be sharing our concerns with Senate offices and hope you will join us in opposing this bill that would impede the ability of our affiliate network to care for people with disabilities. United Cerebral Palsy is a part of major national coalitions focused on the preservation of coverage for individuals with pre-existing conditions, continued coverage for rehabilitative and habilitative services, and protecting Medicaid. In short, we are not alone in our concerns and we will continue to work together to support the needs of individuals with disabilities and the providers who serve them.


Senators need to hear from constituents, and we hope you will tell your story. To learn more about UCP’s public policy work and to get involved, please visit http://ucp.org/what-we-do/public-policy/.

Share Your Video for World CP Day!

“What do you want the world to know about CP?”

In honor of World CP Day 2017, UCP wants you to tell the world what you want to know about Cerebral Palsy (CP)! All you have to do is send us a short (less than a minute) video telling us what you’d like the world to know about CP and your video could be featured as part of video celebrating World CP Day on October 6th. 

 

For questions, and to submit your video, please email UCP National’s Marketing Specialist, Kaitlyn Meuser at kmeuser@ucp.org. 

Capital Home Care on the Impact of Personal Care for People with Disabilities

Karin Hitselberger, Public Education Associate

Home and personal care can be an essential aspect of life for many people with disabilities and their families. Home care services play a vital role in helping some individuals with disabilities live their lives independently in their own community, helping to ensure that they are able to live a life without limits. Capital Home Care, a program of UCP of Central Pennsylvania, is a non-medical home care provider for individuals over the age of 18 in the Central Pennsylvania area.

Home care is a term that encompasses a variety of different services that can be received in a consumer’s home. Angela Griffith, Director of Capital Home Care, explains that the services provided through Capital Home Care can be anything from assistance with chores, to help getting to (or participating in) activities in the community, personal care assistance, and a range of other tasks. Each consumer receives customized care; no two people are exactly alike, so each person’s care may look a little different.

Angela says one of the most important things to understand about home care is that personal care services are essential for enabling people to live at home with their families or independently, which many would be unable to do without home care services.

Angela started with Capital Home Care as a Personal Care Attendant, or PCA, and says one thing people may not realize is the impact these services have not only on the consumer but also the provider, adding that providers get as much out of the experience as they give to consumers.

Angela says that she’s been able to experience this impact first-hand, having had the opportunity to accompany one of Capital Home Care’s consumers and his PCA to the Pennsylvania State Capitol to advocate for disability policy.

“People don’t often realize the impact it has for the caregiver and the consumer…that was great to see, and a reminder for me of what we do every day,” she says.

To find out more about home care, or other services your local UCP affiliate may provide, contact them using the affiliate locator on our website.

From right, Angela Griffith, along with a consumer and his PCA at a Pennsylvania Lobby Day

From right, Angela Griffith, along with a consumer and his PCA at a Pennsylvania Lobby Day

United Cerebral Palsy Statement on Hurricane Harvey

We share the feelings of so many health and human service organizations across the U.S. who are watching the storm and recovery efforts underway in Southeast Texas.

We are thinking of all the families and communities who have been impacted by the storm. We know, from experience, that a storm of this magnitude can produce unimaginable destruction– and may compromise the safety of people living with disabilities.

United Cerebral Palsy affiliates in Oklahoma and Louisiana are actively engaged in the recovery efforts underway and may assist as called upon. We are also monitoring the storm and the possible impact it may have for our affiliates in Louisiana and other neighboring areas. UCP affiliates work diligently on disaster preparedness plans to ensure that the individuals and families in their care, across the U.S. and Canada, are always kept safe in any type of emergency and UCP National supports their efforts.

For information regarding the status of Harvey, please visit HHS’ Public Health Emergency website: https://www.phe.gov/emergency/events/harvey2017/Pages/default.aspx

Residents in the Houston area may also find resources at the Mayor’s Office for People with Disabilities: http://www.houstontx.gov/disabilities/

To ensure that you. your family and your loved ones are prepared in the event of a natural disaster, we recommend our blog post at My Life Without Limits: http://mylifewithoutlimits.org/disaster-preparedness-month-tips-and-tricks-to-help-you-live-a-life-without-limits/

FEMA‘s resources for people with disabilities, access, and functional needs: www.fema.gov/resources-people-disabilities-access-functional-needs

Additional preparedness tips and resources can be found on UCP’s website at: http://ucp.org/resources/health-and-wellness/safety/disaster-preparedness/

 

Facts About Employment

This post and the accompanying infographic are by UCP’s Summer 2017 and Programs and Development Intern, Sara Shemali

 

The worst global recession in recent history, the great recession, yielded unemployment rates which peaked in 2009 at 10 percent. Lowering this exceptionally high rate of unemployment became a national priority in America. Yet, the current rate of unemployment for people with disabilities still stands at 10.5 percent, over double the rate of current unemployment for people without disabilities and still greater than that peak rate of 10%. The difficulty that people with disabilities experience when finding and applying for jobs has rippling effects, making it harder for them to achieve financial autonomy and gain independence, as well as a myriad of other benefits of employment.

Barriers and Benefits

Individuals with disabilities face significant barriers to employment that persist regardless of education, race, age,or gender. According to data collected by the Bureau of Labor Statistics in 2016, at all levels of education, people with disabilities are less likely to be employed than their able-bodied counterparts. This data reflects the obstacles many people with disabilities face when looking for and obtaining work. The Bureau of Labor Statistics, in a 2013 news release, reported that 70.8 percent of people with disabilities between the ages of 16 and 64 had experienced at least one barrier to employment in the past. These barriers include a person’s own disability, lack of education or training, insufficient transportation, and the need for accommodations on the job.

When individuals with disabilities are given the resources to overcome these barriers, they are valuable assets to the companies that hire them. Supportive employment for people with disabilities, such as the partnership between UCP of the North Bay and WineBev, has long proved to be effective. WineBev implemented a successful training program which provides not only accessible but also competitive employment for people with disabilities. Another company found that the young people with disabilities that they hired had an attrition rate of only one percent, compared to 10 to 15 percent for people without disabilities. Their workers with disabilities were also more productive than their workers without. Furthermore, a recent study published in the Journal of Autism and Developmental Disorders demonstrates a link between having a developmental disability and being able to come up with unique and creative solutions to problems.This trait makes people with developmental disabilities excellent candidates for jobs which require divergent and out of the box thinking.

The Business Case

Employment of people with disabilities is not just a worker issue. It is also imperative to analyze the benefits of hiring individuals with disabilities from a business point of view. One concern employers may have about hiring a candidate with a disclosed disability is the cost of accommodations. However, the Job Accommodation Network has found that most (59%) of accommodations cost nothing to employers to implement. One accommodation that employers are increasingly making is allowing employees with disabilities to work from home some or all of the time, an accommodation that more and more workplaces offer to employees with or without disabilities anyway. It is currently estimated that 463,000 people with disabilities, making up 7.1 percent of people with disabilities, regularly work from home.

When accommodations do incur some cost, 36 percent of employers reported a one-time cost, typically around five hundred dollars. Only five percent of employers reported that the cost of accommodations was ongoing or a mixture of one-time and ongoing costs. In addition to being low-cost, accommodations can have a number of positive consequences, including retaining valuable employees and increasing the employee’s productivity, reducing employee absenteeism, improving employee interactions, and increasing productivity for the company as a whole. Employers also have a variety of free resources at their disposal to help them meet the needs of their employees with disabilities, including the Employer Assistance and Resource Network (EARN) and consulting from the Job Accommodation Network (JAN).

Technology and the Future

Although the levels of unemployment for individuals with disabilities may seem staggering when compared to the unemployment rate of people without disabilities, there is promise for improvement in the future. As technology advances, new devices that further accessibility and that improve health and longevity will likely increase employment of people with disabilities. The BrailleNote Apex, one such new technology, features a word processor, calendar, media player, web browser, and GPS, among other things, all in braille and in one device which assists the visually impaired. Assistive technologies are not only becoming more sophisticated but also more commonplace and integrated into the workplace. For example, Microsoft has just announced its plans to integrate eye-tracking features into Windows 10, which will make the software more accessible, and make it easier for programmers to improve and innovate new eye-tracking applications and accessories. These advancements will make it easier for people with disabilities to access job opportunities and work without limits.

For more information regarding employment for people with disabilities check out UCP’s Facts about Employment infographic

For a detailed image description of the infographic, click here.