Joining Forces: UCP and Sprint Relay

Over the years Sprint Relay has responded to communication challenges in the lives of people with speech disabilities. UCP is excited to be in partnership with Sprint Relay to help promote the products and services of Sprint Relay while furthering UCP’s efforts to advance the accessibility movement for people with a spectrum of disabilities. This partnership will raise awareness of these various services and products available through Sprint Relay that can help people with a variety of hearing difficulties and people who have speech disabilities to communicate with friends and family and live as independently as possible.

Sprint is the largest and most technologically advanced Telecommunications Relay Service (TRS) provider in the nation with more than 22 years of experience. Sprint Relay services are provided to persons who are deaf, hard of hearing, deaf-blind, or who have a speech disability, and give these individuals the ability to communicate on the phone or internet. Sprint’s experience in this field ensures Sprint Relay users receive quality service regardless of the type of relay service they are using. Sprint Relay service is available 24 hours a day, 365 days a year, with no restrictions on the number of calls placed or the length of calls. For more information, visit www.sprintrelay.com. Users with a speech disability can go to www.sprintsts.com.

“Sprint Relay and UCP share a common vision that technology can be harnessed to open up the world to individuals with disabilities,” said Stephen Bennett, President & CEO of United Cerebral Palsy. “UCP is excited to be partnering with Sprint Relay to help raise awareness of the services they provide that can really make an incredible difference in the day-to-day lives of so many people.”

“Sprint has always been committed to making communication possible for all of our customers, including those with speech disabilities. Sprint Relay delivers on this promise through our new partnership with United Cerebral Palsy who is a recognized advocate serving 170,000 clients and families every day. We look forward to working together to raise awareness about Speech-to-Speech Services available” said, Mike Ellis, Sprint Relay Director.

If you need more information about the Sprint Relay Service, please do not hesitate to contact the Sprint TRS customer service at 800-676-3777 (voice), 800-676-3777 (TTY) or send an email to Sprint.TRSCusSer@sprint.com.

UCP ELECTS SEVEN TO BOARD OF TRUSTEES

FOR IMMEDIATE RELEASE

CONTACT:
Kaelan Richards: 202-973-7175, krichards@ucp.org

 

UCP ELECTS SEVEN TO BOARD OF TRUSTEES

Individuals bring diversity of experience and knowledge to continuing efforts to ensure a life without limits for people with disabilities 

 

Washington, D.C. (May 20, 2013) – United Cerebral Palsy (UCP) elected seven members to its Board of Trustees during its 2013 International Conference in San Diego, CA last month.

“We are extremely grateful to all members of our Board of Trustees for their passion for UCP’s mission and their commitment to the people we serve,” said Stephen Bennett, President & CEO of UCP, in announcing the selection of Trustees.      

The newly elected members of UCP’s Board of Trustees are listed below. To view the complete list, please visit ucp.org/about/board.

Actress, Producer and Director Cheryl Hines is a two‐time Emmy nominee for her role as Cheryl David on HBO’s Golden Globe Award‐winning series Curb Your Enthusiasm, the brainchild of Seinfeld co‐creator Larry David. Hines can currently be seen starring in the hit ABC comedy series Suburgatory opposite Jeremy Sisto and Jane Levy.

Last year, Hines filmed a co‐starring role in the feature film PASADENA, produced by Midway Films. Hines co‐stars opposite Peter Bogdanovich and Alicia Witt. Hines’s feature film directorial debut, Serious Moonlight was released through Magnolia Films two years ago. The film premiered with critical acclaim at the Tribeca Film Festival. The late Adrienne Shelly, who directed Hines in the critically acclaimed Waitress, wrote the screenplay.

Hines’s additional television projects included a co‐starring role in the live action/CG adaptation of the Nickelodeon hit animated series The Fairly Odd Parents and television movie A Fairly Odd Movie: Grow Up, Timmy Turner! opposite Jason Alexander. She had major story arc on the ABC drama series Brothers and Sisters and a starring role opposite Megan Mullally in the ABC Television Network series In the Motherhood, a single camera comedy series chronicling the hilarious ups and downs of motherhood.

Hines has also produced and directed several television projects including Executive Producer and creator of the NBC television series School Pride, a proactive, alternative series that told the stories of communities coming together to renovate their aging and broken public schools. She also produced the award‐winning comedy series Campus Ladies for the Oxygen Channel and the Starz Networks original comedy series Hollywood Residential.

Hines is one of Hollywood’s busiest film actresses with starring roles in a number of critically acclaimed feature films and box office hits including The Ugly Truth, RVWaitressThe Grand and Bart Got A Room.

Hines previously served on the Board of Trustees of UCP from 2006 – 2012, and has been tireless in her support for the individuals whom UCP’s affiliates serve.

 

Pamela Talkin was sworn in on July 16, 2001 as the tenth Marshal of the Supreme Court of the United States and is the first woman to hold the position.

Talkin came to the Court after six years as the first Deputy Executive Director of the Office of Compliance, the independent regulatory agency created by the Congressional Accountability Act of 1995, which applied eleven of the nation’s labor and employment laws to Congress. There, she promulgated procedures and regulations for the application of the laws, managed all operations of the Office, and acted as liaison between the Office and Congressional members, committees, and legislative branch agencies including the Architect of the Capitol, the Capitol Police, and the Congressional Budget Office. Talkin also served as President of the international Association of Labor Relations Agencies.

From 1989 to 1995, Talkin was a Presidentially‐appointed, Senate‐confirmed member of the Federal Labor Relations Authority. Previously, Talkin was the Chief of Staff at the U.S. Equal Employment Opportunity Commission, and Assistant Regional Director of the National Labor Relations Board’s San Francisco Region (Northern California and Hawaii). Talkin was also the National President of the NLRB Union, which represented over 2,000 professional and clerical employees.

Talkin began her career as a Spanish teacher and guidance counselor in New York City high schools. She earned her bachelor’s and master’s degrees in Spanish from the City University of New York at Brooklyn College. She has done postgraduate work at the City University of New York and at Harvard University’s John F. Kennedy School of Government. She has been re-elected to a new three-year term.

 

Gloria JohnsonCusack is the Executive Director of Leadership 18, an alliance of Chief Executive Officers responsible for leading some of the country’s largest and most well respected charities, non‐profits, and faith‐based organizations.

Johnson‐Cusack brings more than 20 years of management, political and strategic communications expertise informed by leadership positions in the private sector, U.S. Congress, national presidential campaigns, municipal and federal government, and the White House.

Johnson‐Cusack previously served as Senior Vice President at GMMB, a D.C.‐based strategic communications and advertising firm focused on cause marketing. In this role, she advanced issues on behalf of key nonprofit organizations and foundations.

In the public affairs arena, Johnson‐Cusack served as Director of the Office of Congressional Relations at the Peace Corps, Special Assistant to the President in the White House Office of National Service, and Director of Constituent Relations at the Corporation for National Service. She was Chief of Staff for the D.C. Office of the Inspector General and was policy advisor to Congresswoman Eleanor Holmes Norton and Senator Albert Gore, Jr.

Johnson‐Cusack holds a bachelor’s degree from Columbia College, Columbia University and a master’s degree in public administration from the Key Executive Management Program at American University. She is a founder of the Eli J. Segal Citizen Leadership program at Brandeis University, media trainer, church lay leader and breast cancer survivor and advocate. She is married with one adult daughter. She has been re-elected to a new three-year term.

 

Christobel Selecky is a chief executive and entrepreneur with nearly 30 years experience in the health care industry. She currently provides strategic consulting and advice to management teams, companies, and investors currently in or seeking to enter the healthcare field focusing on strategy and business plan development, disease and care management program development and assessment, sales and market positioning, product planning, public policy analysis and strategy, and CEO/Senior Management advising. She also serves on the Board of Directors of National Healthcare Services, the venture capital arm of Memorial Healthcare Services, a preeminent, non-profit healthcare system located in Southern California.

Selecky most recently served as President, CEO, Chairman, and member of the Board of Directors of LifeMasters Supported SelfCare, which she led from 1996 until 2009. Under her leadership, LifeMasters raised more than $60 million in venture capital, grew to $130 million in annual revenues, employed more than 1,200 people in seven locations, provided care and disease management and health improvement services to more than 1 million program participants nationwide, won numerous industry awards, and counted some of the largest and most well‐respected health plans, employers, provider groups, labor unions, and government entities as its clients.

A veteran in the field of managed health care, her career began at FHP International Corporation, an entrepreneurial, privately held staff‐model HMO. While at FHP, Selecky saw the company through its conversion, public offering and rapid expansion. She has also served on the boards of both the California and New Mexico HMO Associations and The Medical Quality Commission.

Selecky received a master’s degree in public communication from the S.I. Newhouse School of Communications at Syracuse University and a B.A. with high honors in Political Science and Philosophy from the University of Delaware. She has been re-elected to a new three-year term.

 

Eric Hespenheide is a senior partner at Deloitte & Touche LLP with over 25 years of distinguished leadership and client service experience. He serves as the Global Leader of the Deloitte Touche Tohmatsu (DTT) member firms’ Corporate Responsibility & Sustainability Services Group and managing partner of the global Internal Audit Practice.

Hespenheide is leading efforts in marketplace research, coordinating an integrated service offering and helping clients solve complex challenges with sustainability programs. His leadership has led to significant growth, resulting in the practice being widely recognized as a leading provider of internal audit services among Fortune 1000 companies. In addition, he currently serves as the Lead Partner or Advisory Partner on a number of global engagements in a variety of industries.

Hespenheide joined the Detroit practice of Deloitte & Touche LLP in 1977 and was named global managing partner of Internal Audit Services in 2001. Prior to 2001, he served as the Assurance and Advisory managing partner for the Great Lakes Region and as an audit partner for large global manufacturing companies.

He is a member of the American Institute of Certified Public Accountants and the Michigan Association of Certified Public Accountants. Hespenheide has twice served on the Board of the United Cerebral Palsy, chairing the finance, audit and nominating committees. Hespenheide was recently elected to the Board of Directors of the Cerebral Palsy International Research Foundation. Hespenheide also serves on the Dean’s Advisory Council at Louisiana State University, and has been actively involved in working with the Institute of Internal Auditors since 2001, serving as a board trustee for the IIA’s Research Foundation. He is a frequent speaker on the topic of internal auditing at various forums around the world.

 

Ian C. Ridlon is General Counsel and Director of Legal Services at the Rhode Island Interlocal Risk Management Trust. Prior to joining The Trust, Ridlon was in private practice with a large national law firm where he engaged in insurance defense work, commercial and environmental litigation, and labor and employment work. He also successfully appealed the termination of benefits to children with developmental disabilities in a precedent setting matter before the Vermont Supreme Court.

Ridlon has been involved with United Cerebral Palsy on the state and national level for more than 15 years. On the state level, he has been the Board Chair for several terms and has also chaired two other non‐profit organizations created by the affiliate that provide independent living facilities for low income individuals with developmental disabilities.

On the national level, he has previously served on the Board of Trustees and is a recipient of the 2004 Chairperson’s Award. He has also served on numerous committees and was previously the chair of the nominating committee and the by‐laws committee.

Ridlon is a graduate of Bowdoin College and Vermont Law School. He currently resides in Rhode Island with his wife, Patty, and his three boys, Conor, Brendan, and Aiden. He has been re-elected to a new three-year term.

 

Dr. James T. Bennett graduated from Tulane School of Engineering and Tulane Medical School. A New Orleans native, he maintains his relationship with Tulane Engineering as a member of the Advisory Board for BME curriculum. His orthopaedic residency was at the University of North Carolina, AI DuPont Institute and a Fellowship at Scottish Rite Hospital in Atlanta.

Bennett’s interest in computer assisted navigation stems from former Chairman of Tulane Orthopaedics Dr. Tom Whitecloud’s work in developing Stealth navigation. Bennett’s practice is primarily scoliosis although he maintains his interest in Pediatric Orthopedics in general. Bennett has been re-elected to a new three-year term.

# # #

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

REGISTER TODAY FOR THE 2013 WORLD CP CHALLENGE

FOR IMMEDIATE RELEASE

CONTACT:

Kaelan Richards: 202-973-7175, krichards@ucp.org

 

REGISTER TODAY FOR THE 2013 WORLD CP CHALLENGE 

4-week health and wellness activity raises support for people with disabilities

Washington, D.C. (May 16, 2013) – United Cerebral Palsy (UCP) is pleased to announce that the registration for the 2013 World Cerebral Palsy Challenge is now open.  Register today to join an international competition for good!

UCP launched the World CP Challenge in September 2012 in an effort to provide an accessible health and wellness activity that is proven to promote healthy living and change participants’ health and fitness habits, all while raising awareness and crucial funds for direct services and research for people with cerebral palsy and other disabilities. Cerebral palsy is a permanent disability resulting from damage to the developing brain, usually before birth. CP is the largest cause of physical disability in children; each year, approximately 10,000 infants in the United States will develop cerebral palsy.

World CP Challenge participants form teams of four and challenge themselves to take 10,000 steps a day, everyday, from September 4 through October 2. Throughout the Challenge, participants log their daily steps online, climbing virtual mountains around the world with each step and receiving weekly fitness tips and healthy recipes. And the ‘steps’ can be any activity—the World CP Challenge is unique in that it enables everyone to be active in their own way with the option to convert more than 40 activities, such as yoga or swimming, into steps. The option to convert almost any activity into steps makes the World CP Challenge available to people of all abilities. Throughout the Challenge, participants can fundraise, with all proceeds supporting services to people with disabilities and cerebral palsy research.

This year, the World CP Challenge will held in Australia, Canada, the United Kingdom and the Netherlands. In these countries, the event is known as “Steptember.”

The World CP Challenge is not only a great opportunity for individuals, but for corporations and organizations as well. The Challenge serves as an employee engagement activity, increases productivity and reduces sick days among company employees. Participating companies can have employees compete amongst themselves, as well against other organizations to see who can reach the top of each mountain first.

“UCP and our international partners are thrilled to announce that registration for the 2013 World CP Challenge is now open—and we encourage everyone to check out our website, learn more about the Challenge and sign up! The World CP Challenge is a fun and exciting way to get active, compete against other teams and help to raise support for people with disabilities around the world,” said Stephen Bennett, President & CEO of United Cerebral Palsy. “It truly is an international effort to bring people together in support of a great cause. We hope you will join us, and see you on the mountain!”

To learn more about the Challenge, please visit our website, www.worldcpchallenge.org, or contact Sarah Abram at sabram@ucp.org.

# # #

About United Cerebral Palsy

United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

UCP ANNOUNCES UNIVERSITY OF VIRGINIA AS WINNER OF WORLD CP DAY INVENTION CONTEST

FOR IMMEDIATE RELEASE

CONTACT:
Kaelan Richards: 202-973-7175, krichards@ucp.org

 

UCP ANNOUNCES UNIVERSITY OF VIRGINIA AS WINNER OF WORLD CP DAY INVENTION CONTEST 

Team designs solar-powered wheelchair, awarded 1st prize of $20,000

Donates chair to man who submitted idea, funds to help advance World CP Day

Washington, D.C. (May 10, 2013) – United Cerebral Palsy (UCP) and its international partners have announced the winner of the first annual World CP Day invention contest: a team from the University of Virginia, who created a solar-powered wheelchair.

World CP Day was established in 2012 as a way to raise awareness and support for people living with cerebral palsy around the world. Through the “Change My World In One Minute” contest, people can submit ideas for something that would make a real difference in the lives of people with cerebral palsy—and an incredible 473 ideas were submitted. From these, three final ideas were selected: a fold-up motorized wheelchair, a documentary on cerebral palsy in the 21st century and a solar-powered wheelchair. The public was then invited to submit proposals for a chance to win $25,000 and to bring their ideas to life.

The team from the University of Virginia, led by Dr. Mool Gupta, included six students: Dennis Waldron, Duncan McGillivray, Craig Ungaro, Ankit Shah, Maria Michael and Kyung Kim, and was primarily constructed at the National Institute of Aerospace’s Research and Innovation Laboratories Facility. The concept for the wheelchair was inspired by the design of retractable roofs on convertible cars and utilizes lightweight yet robust materials with high efficiency solar cells. This innovative combination enables the wheelchair to increase its range by more than 40 percent over battery usage, and to run a one mile per hour indefinitely without consuming any battery charge. Operated by a single switch, the wheelchair includes standard components as well as USB power outlets. 

Awarded $20,000 for their first prize invention, Dr. Gupta and his students decided to use the prize money to refine and ship the wheelchair to the man who posted the suggestion online, Alper Sirvan, who has cerebral palsy, and donate the remaining proceeds back to UCP to help advance World CP Day in the years to come. 

“UCP is thrilled to present this award to the University of Virginia for their creation of a solar powered wheelchair as part of the first World Cerebral Palsy Day’s Change My Life in One Minute invention contest, which focused on concrete, attainable ideas that could change people’s lives. We are very proud to say that, together with the incredible efforts of the University of Virginia, Dr. Gupta, and all of the students and partners involved, one of these ideas has been brought to life,” said Stephen Bennett, President and CEO of United Cerebral Palsy. “And it is truly inspiring to hear of the University of Virginia’s decision to use the prize money to send the wheelchair to the man who inspired the idea and return the remaining funds. I applaud these extraordinary individuals for their work, and appreciate their efforts in helping to ensure that people living with cerebral palsy can live their lives to the fullest.”

“This team of graduate and undergraduate students have created a device that will truly benefit those with disabilities,” Engineering School Dean James H. Aylor said. “The students on the team are excellent examples of the type of engineer we strive to produce in the U.Va. Engineering School – innovative leaders who are agents of change in society. I am thankful for the World CP Day organization for giving them this opportunity and for the National Institute of Aerospace for providing laboratory space.”

# # # 

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

About the World CP Day Campaign:
World Cerebral Palsy Day is an innovative way for 17 million people with CP to tell the world what they need to make their lives better and it’s a way to turn some of those ideas into reality. World CP Day was piloted in 2012. From 1 August, people with cerebral palsy, their families and friends posted ideas online for something that could be created, developed or modified that would change the world for someone with cerebral palsy. Ideas were posted as text or video. Each idea needed to take only 1 minute to read or watch. From World CP Day, September 4, people were encouraged to go online, review the ideas and vote for the concepts that could have the greatest impact on people’s lives. At the end of September, the World Cerebral Palsy Day Panel reviewed the ideas and public votes. Three ideas were shortlisted for development. Social activists, researchers, inventors, and innovators were then invited to turn the shortlisted ideas into reality. They competed for a total prize pool of $25,000. The winner was announced on April 27, 013.

World CP Day partners include organizations from America, Australia, Austria, Azerbaijan, Bangladesh, Bulgaria, Canada, China, Croatia, Finland, Germany, India, Indonesia, Ireland, Netherlands, New Zealand, Niger, Panama, Poland, Portugal, Scotland, Singapore, Slovenia, Sri Lanka, South Africa, St Lucia, Sweden, Turkey and the UK.

UCP HONORS PUBLIX AS EMPLOYER OF THE YEAR

Recognized for outstanding efforts to employ people with disabilities

Washington, DC (May 9, 2013) – United Cerebral Palsy (UCP) is proud to announce that Publix Supermarkets in Lakeland, Florida has been awarded the 2013 Employer of the Year Award as part of UCP’s Awards for Excellence celebration.

Presented at UCP’s 2013 Annual Conference in San Diego, CA, the Awards for Excellence recognize UCP affiliates, individuals and companies whose exceptional activities, achievements and dedication exemplify the UCP mission to educate, advocate and provides support services to ensure a life without limits for people with a spectrum of disabilities.

The Employer of the Year Award recognizes a business or agency that has made an outstanding contribution to employing people with physical disabilities or has supported the training and hiring of people with disabilities, and created an improved work environment. Employees with disabilities must be fully integrated into all aspects of the workplace.

Nominated by UCP of Central Florida in recognition of their long relationship with the company, Publix Supermarkets in Lakeland, Florida has demonstrated a commitment to diversity and helping people reach their full potential through meaningful employment. Publix sets a precedent for all workers to respect diversity and to be mindful of disabilities, including requiring all managers to attend diversity workshops entitled “Developing Cultural Competence.” In addition, diversity training and disability awareness are incorporated into new associate trainings, creating an inclusive and understanding community where everyone is valued.

“Publix fosters a workplace environment with a strong commitment to diversity," said Senior Vice President John Hrabusa. “I’m proud to accept this award on behalf of our managers who embrace inclusiveness and are dedicated to providing successful employment opportunities to people with disabilities.”

“Publix sets an impressive standard in the areas of diversity and employing people with and without disabilities,” said Dr. Ilene E. Wilkins, President and CEO of UCP of Central Florida. “Our goal at United Cerebral Palsy is for all people to have the ability to live life without limits. Publix provides that opportunity to thousands in their company, helping make a significant shift in our cultural views on employing people with disabilities.”

“UCP is proud to honor Publix Supermarkets for their efforts to create an inclusive work environment that only sees abilities, not differences. They have fostered a community of strong relationships and a culture of opportunity for employees with disabilities, who are able to take positions where they grow and can perform best,” said Stephen Bennett, President and CEO of UCP. “This is an issue of critical importance, as the unemployment rate for people with disabilities is nearly double that of general population—and Publix stands as an example of what can be done by corporate citizens in the civil rights movement for people with disabilities.”

# # #

About United Cerebral Palsy

United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

UCP HONORS EDWARD R. MATTHEWS WITH LEADERSHIP AWARD

FOR IMMEDIATE RELEASE

CONTACT:

Kaelan Richards: 202-973-7175, krichards@ucp.org

 

UCP HONORS EDWARD R. MATTHEWS WITH LEADERSHIP AWARD 

Maul Award Recognizes Exceptional CEOs at United Cerebral Palsy

Washington, DC (May 2, 2013) – United Cerebral Palsy (UCP) is pleased to announce that the 2013 Kathleen O. Maul Leadership Award has been awarded to Edward R. Matthews, Chief Executive Officer of UCP of New York City.

The Kathleen O. Maul Leadership Award is presented to an exceptional chief executive of a UCP affiliate in memory of Kathy Maul, a remarkable executive director at UCP of Suffolk who died young and left a legacy of leadership ability and strong commitment to UCP. It was presented as part of UCP’s Awards for Excellence, which are given annually to UCP affiliates, individuals and companies whose exceptional activities, achievements and dedication exemplify the UCP mission to educate, advocate and provides support services to ensure a life without limits for people with a spectrum of disabilities.

Matthews recognized the 2013 honor for his dedication and long history working to improve the services and supports provided to people with disabilities, including: part of the Medicaid Redesign Team, responsible for overhauling New York State’s massive Medicaid system; serving on the Steering Committee to implement the People First Waiver, a partnership between New York State and the federal government to reconstruct the Medicaid funding system for New York’s citizens with developmental disabilities, to provide them greater choice and access and reduce costs; leading the InterAgency Council (IAC) in New York City, a coordinating body and trade association consisting of over 150 agencies providing services for people with developmental disabilities; and serving as CEO of UCP of NYC since 1989, during which the affiliate has grown to a budget size of over 107 million and provides services to more than 14,000 children, adults and their families throughout New York City.

“I am so pleased to honor Ed Matthews with the 2013 Kathleen O. Maul Leadership Award for his extraordinary efforts to make a difference in the lives of people with disabilities,” said Stephen Bennett, President and CEO of UCP. “For more than 20 years, Ed has served as the CEO of UCP of New York City, leading and growing that affiliate into one of the strongest in the country—and a shining example of UCP’s mission to advance the independence, productivity and full citizenship of people with a spectrum of disabilities. Congratulations Ed, and we look forward to your continued successes.”

“The Kathy Maul Award is very meaningfully personally and professionally. To me, it represents the values that Kathy & UCP have always stood for,” said Ed Matthews, CEO of UCP of New York City. “I am honored to join my distinguished friends and colleagues who have been recipients.”

# # #

About United Cerebral Palsy

United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

UCP PRESENTS 2013 AWARDS FOR EXCELLENCE

FOR IMMEDIATE RELEASE

CONTACT:

Kaelan Richards: 202-973-7175, krichards@ucp.org

 

UCP PRESENTS 2013 AWARDS FOR EXCELLENCE 

Awards recognize exceptional achievements, activities and dedication to UCP’s mission

Washington, DC (May 2, 2013) – United Cerebral Palsy (UCP) has announced the honorees for the 2013 Awards for Excellence, which recognize UCP affiliates, individuals and companies whose exceptional activities, achievements and dedication exemplify the UCP mission to educate, advocate and provides support services to ensure a life without limits for people with a spectrum of disabilities.

The 2013 Awards for Excellence were presented at UCP’s 2013 International Conference, “Redefining Family: Supporting the New Caregiver Community,” which explored how families have evolved and expanded above and beyond the traditional definition and the ways in which UCP and its affiliate network can best continue to provide and adapt to the needed supports and resources people with disabilities and their families need.

More than 150 affiliates, partners and allies participated in this year’s conference, which featured UCP’s Celebrity Ambassadors, Emmy-nominated actress Cheryl Hines and actor RJ Mitte, known for his role as Walter White Jr. in the Emmy-nominated AMC drama Breaking Bad. Actress Meredith Eaton, known for her breakout role in the ABC hit series Boston Legal, and granddaughter of one of UCP’s founders, Nina Eaton, also helped to present the awards.

“UCP is thrilled to recognize so many extraordinary leaders who are striving each and every day to make a difference in the lives of people with disabilities,” said Stephen Bennett, President and CEO of United Cerebral Palsy. “The Awards for Excellence honor our affiliates and partners who are committed to advancing the independence, productivity and full citizenship of people with a spectrum of disabilities—and we are proud to stand with our honorees today.”

The eight 2013 UCP Awards for Excellence were presented to the following recipients at the Opening Reception and the Awards for Excellence dinner and presentation during UCP’s International Conference, held last week in San Diego, CA.

The Kathleen O. Maul Leadership Award is presented to an exceptional executive director in memory of Kathy Maul, a remarkable executive director at UCP of Suffolk who died young and left a legacy of leadership ability and strong commitment to UCP.

Edward R. Matthews, Chief Executive Officer of UCP of New York City, was recognized with the 2013 honor for his dedication and long history working to improve the services and supports provided to people with disabilities, including: part of the Medicaid Redesign Team, responsible for overhauling New York State’s massive Medicaid system; serving on the Steering Committee to implement the People First Waiver, a partnership between New York State and the federal government to reconstruct the Medicaid funding system for New York’s citizens with developmental disabilities, to provide them greater choice and access and reduce costs; leading the InterAgency Council (IAC) in New York City, a coordinating body and trade association consisting of over 150 agencies providing services for people with developmental disabilities; and serving as CEO of UCP of NYC since 1989, during which the affiliate has grown to a budget size of more than 107 million and provides services to more than 14,000 children, adults and their families throughout New York City.

The Employer of the Year Award recognizes a business or agency that has made an outstanding contribution to employing people with physical disabilities or has supported the training and hiring of people with disabilities, and created an improved work environment. Employees with disabilities must be fully integrated into all aspects of the workplace.

Nominated by UCP of Central Florida in recognition of their long relationship with the company, Publix Supermarkets in Lakeland, Florida has demonstrated a commitment to diversity and helping people reach their full potential through meaningful employment. Publix sets a precedent for all workers to respect diversity and to be mindful of disabilities, including requiring all managers to attend diversity workshops entitled “Developing Cultural Competence.” In addition, diversity training and disability awareness are incorporated into new associate trainings, creating an inclusive and understanding community where everyone is valued. Publix offers an inclusive work environment that only sees abilities, not differences.

The Ritter Legacy Award recognizes an affiliate that has produced exemplary communications through a variety of media that increases public awareness about people with disabilities, the programs of the affiliate and the national UCP brand. The award also recognizes the affiliate’s appropriate use of the official UCP logo, colors and messaging.  The 2013 Ritter Legacy awardee is UCP of the North Bay for its 2012 Annual Report, “Season of Gratitude Holiday” Ask Program, which reached out to donors in a way that emphasizes personal impacts that each individual can make in supporting UCP programs, and the Who We Are & Where We are Going PowerPoint Presentation, which is a quick and effective way to share information about all of the affiliate’s programs. UCP of the North Bay consistently develops communications that convey their mission, vision, and many facets of their services, and is honored for their innovative communications and powerful promotion of their programs. 

The Outstanding Youth Award is designed to honor a young person who has significantly enhanced the lives of people with disabilities through caregiving, volunteerism, advocacy, innovation or fundraising. This year’s awardee is Katy Fetters, nominated by UCP of Orange County. Fetters is an ambitious and motivated young woman. Her blog, Teen Cerebral Palsy, connects young people living with CP. She creates a safe space for people to share their experiences and get support from one another. Her honesty and positivity make her a wonderful role model for young people who are learning to be self-advocates. Fetters is also an active volunteer and ambassador for UCP of Orange County, and inspires teens to embrace their disabilities and challenge themselves to live a life without limits. 

The Nina Eaton Program of the Year award recognizes a program of a UCP affiliate that has made an extraordinary contribution to the quality of life of people with disabilities, enabling them to become more independent, productive, or integrated into the family or community through a particular program.  The 2013 award is presented to Ability Connection Oklahoma for their New Voices program. 

New Voices is an assistive technology program that pairs non-verbal children (and some adults) with an Apple iPad with comprehensive language software that fosters communication efforts. One of the unique aspects of the program is that the iPad is theirs to keep, which facilitates more growth and progress in their ability to communicate. 

New Voices is making it possible for children and adults to gain more independence and confidence. Some children are learning to speak for the first time or communicate with teachers, family and friends. Enabling communication through technology allows children to participate in school and other activities with greater ease, and promotes inclusion. Thanks to the digital technology, voices that were once silent are now heard, with one recipient of an iPad writing “you have made the possibilities limitless for me.”

The Ethel Hausman Volunteer of the Year award recognizes an exceptional individual who, through volunteering, has made an outstanding contribution to UCP. This year’s award is presented to Jay Kapp, nominated by UCP of Georgia. His dedication to advancing UCP’s mission extends the legacy of his father, the late Charles Kapp. Charlie was a senior sales executive with Miller Brewing Company, and his daughter Dana had cerebral palsy. Charlie was a long-time supporter of UCP and fostered Jay’s involvement with UCP. Jay wishes to instill these same values in his two children. Kapp is an exemplary leader that has proved an excellent ambassador for UCP of Georgia, and has served on the Board of Directors for his affiliate since 2001. As the owner of the company Kapp Koncepts, Kapp utilizes his marketing, design, and management expertise to increase the visibility of UCP of Georgia on the local and state levels. Additionally, he attends the Miller Coors-Charlie Kapp Golf Challenge held each year by UCP of Southeast Wisconsin; the event is now in its 17th year.

Kapp’s personal commitment to UCP is evident in the hundreds of hours he volunteers annually and his work to help UCP of Georgia expand its services, and he truly embodies UCP’s mission through his service. 

The Universal Accessibility Design Award recognizes an individual, business, government or governmental agency that has provided leadership developing a universally accessible environment by creating new tools modifying the environment, enhancing independent living or achieving a barrier-free environment.

Gina Hilberry, from Cohen Hilberry Architects in St. Louis, Missouri, represents UCP as its delegate to the ICC ANSI 117.1 Standards Development Committee and serves as Vice Chair of the Wheeled Mobility Task Force. The ICC, or International Code Council, was created in 1994 to develop a single set of comprehensive and coordinated national model construction codes and standards. Section 117.1 addresses access for people with disabilities. The specifications in this standard make sites, facilities, buildings and elements accessible to and usable by people with such physical disabilities as the inability to walk, blindness and visual impairment, deafness and hearing impairment, reaching and manipulation disabilities and reacting to sensory information. The intent of the 117.1 Standard is to allow a person with physical disability to independently get to, enter, and use a site, facility, building, or element. This section deals with the details of design and construction that can have a profound impact on the ability of people with disabilities to live and work in the community.

In 2012, the ICC began a multi-year process to update 117.1. Hilberry, as UCP’s delegate, has shepherded the Wheeled Mobility Task Group in the critical job of applying recent research on the expanding size and variety of wheelchairs and scooters to the basic building blocks of accessibility that have been the U.S. standards for over 30 years. Thousands of buildings across the country will not require individual advocacy because the state requirements for access will already be in place, thanks largely to Hilberry’s work. And, if history is any guide, the ADA’s federal accessibility standards will, over time, incorporate equivalent expanded requirements. Hilberry has spent her architectural career dedicated to improving the standards and policies that enable people with disabilities to move freely and independently in their homes and community. It is the job of architects to make the built environment work for all of us, and Hilberry has truly brought honor to her profession, using the tools of architecture to persuade the powers that be to do what is right.

The Life Without Limits Award honors an individual with disabilities who has demonstrated leadership and achievement of such caliber as to be a significant role model to people with and without disabilities. This year, UCP honors Geri Jewell, nominated by UCP of Tampa Bay.

Throughout her life, Jewell has consistently broken barriers for people with disabilities.  While best known as “Cousin Geri” on the NBC sitcom “The Facts of Life,” Jewell’s life is symbolic of breaking many barriers for people with disabilities. She was the first person with a disability to have a regular role on a prime time series, and her portrayal was not one to be pitied but one that placed people with disabilities on par with other “typical” characters.

She was among the first comics with a disability to have her own regular stand-up routine, paving the way for Josh Blue and the many others that have come after her. She went on to appear in Emmy Award-winning movies, on Sesame Street and most recently on the HBO hit series, “Deadwood.” In 2011, Jewell released her autobiography, I’m Walking As Straight As I Can: Transcending Disability in Hollywood and Beyond. This candid memoir details her experiences from her traumatic birth in Buffalo, New York, to her rise to stardom as a stand-up comic to becoming a television star and documents the harsh realities of show business by recounting the relentless discrimination and abuse she suffered at the hands of people she trusted, and how she rose above it all.  It has recently been recorded as an audio book, making her story even more accessible to others.

Beyond her roles on TV and screen, she is a tireless advocate for people with disabilities, speaking to corporations, government agencies and the media about the importance of treating people with disabilities the same way we all want to be treated. Jewell is famous for her uncanny ability to captivate the hearts of her audiences by using humor to facilitate attitudinal change. She brings to her presentations her personal experiences in life, which in turn allow people to gain insight into the prospect of seeing disability in a totally different light, creating hope where there is none, and joy where there is pain. We are honored to present Geri Jewell with the 2013 Life Without Limits Award for the many ways she has served as a pioneer for the civil rights movement for people with disabilities.

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 About United Cerebral Palsy

United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

UCP RELEASES NEW REPORT ON STATES SERVING AMERICANS WITH DISABILITIES

 

FOR IMMEDIATE RELEASE

CONTACT:

Kaelan Richards: 202-973-7175, krichards@ucp.org

 

UCP RELEASES NEW REPORT ON STATES SERVING AMERICANS WITH DISABILITIES

New format highlights states’ successes with managed care and employment initiatives

Washington, DC (May 2, 2013) – United Cerebral Palsy (UCP) released the 2013 Case for Inclusion today, an annual report that tracks the progress of community living standards for Americans living with intellectual and developmental disabilities (ID/DD).

The 2013 report, in addition to data from all previous reports since 2006, is available on UCP’s website using a robust new web module and design at http://www.ucp.org/the-case-for-inclusion/2013/.

Each state and the District of Columbia (DC) is analyzed and ranked based on five key outcome areas: promoting independence, tracking quality and safety, keeping families together, promoting productivity, and reaching those in need. Since 2006, these rankings enable families, advocates, the media and policymakers to fully understand each state’s progress or lack of improvement, and help to protect programs and services against unwise funding cuts, as well as guide future reforms to promote inclusion and enhance the quality of life for these, and ultimately all, Americans.

This year’s report highlights the progress that has been made, including:

·      38 states now meet the 80/80 Community standard, a dramatic increase from just 14 states in the 2007 report.

·      As of 2011, 13 states have no state institutions to seclude those with ID/DD. 10 states have only one institution each.

·      Since 1960, 209 of 354 state institutions have been closed, leaving just 149 remaining.

·      21 states now meet the 80% Home-like Setting standard (80% in settings with 1-3 residents).  This is up from just 17 states in the 2007 report.

·      34 states participate in the National Core Indicators, an increase from 24 in the 2007 report. 

·      15 states were supporting a large share of families through family support, up from just 10 states in the 2007 report.

The report also identifies problems, such as:

·      All states still have room for improvement, but some states have consistently remained at the bottom since 2007, Arkansas (#50), Illinois (#48), Mississippi (#51) and Texas (#49).

·      Just ten states have at least one-third (33%) of individuals in competitive employment. This is a downturn from 2007, when 17 states met this standard.

·      Waiting lists for residential and community services are high and have grown from 138,000 people in 2007 to 268,000. At this level, a growth of 44 percent would be needed to meet the need for services. 

New in the 2013 Case for Inclusion is highlights of three case studies—two that examine trends in managed care for those with ID/DD with reforms in Kansas and Massachusetts, and one outlining the success of Washington State in promoting competitive employment through its Employment First policy and practices.

Kansas:

·      KanCare represents one of the most aggressive and comprehensive Medicaid reforms affecting those with ID/DD, directly integrating work, health and community; broadening the scope of benefits; and prioritizing competitive employment and improving health outcomes.

·      As of January 1, 2014, individuals with ID/DD will be able to chose from the three private plans currently offered to Medicaid enrollees, all of which fully integrate medical and behavioral health benefits and home and community-based services.

·      KanCare will focus on specific outcomes to determine success, including: increased competitive employment; improved life expectancy; integration of physical health, behavioral health and home and community based services; and improved health.

Massachusetts:

·      The first state to implement a statewide pilot program (called a demonstration) for all dually eligible individuals, including those with ID/DD, Massachusetts aims to improve coordination of care, actual health outcomes, and overall quality of life for Americans with developmental disabilities.

·      Individuals with ID/DD will have new benefits available through the ICO plans, including restorative dental services, expanded personal care assistance, and greater access to durable medical equipment, and the program defines its success on actual outcomes.

·      Although the actual outcomes tracked have yet to be determined, some of the possible measures to be included include access, person-centered care, integration of services and enrollee outcomes.

Washington:

·      Washington State’s Employment First policy supports employment and day program funds targeted for working-age adults and ensures that after nine months of employment services the individual may choose community access programs.

·      By focusing its efforts on this narrow window of time, Washington’s leaders and advocates addressed the difficult goal of finding a job directly through leadership, training and innovation, and clearly defined goals.

·      The impact of this was profound: in seven years, the number of individuals competitively employed rose from 4,440 in 2004 (before the policy) to 5,562 by 2011.

“The Case for Inclusion is a valuable tool for United Cerebral Palsy and advocates across the country to use as we work to advance the civil rights protections and public policies that help support individuals living with disabilities, ensuring fair and full citizenship for all Americans. This year’s report shows in great detail the states are able to provide services and supports that result in better outcomes for people with disabilities, as well as three case studies that can serve as road maps to success,” said Stephen Bennett, President & CEO of United Cerebral Palsy. “It is our hope that the Case for Inclusion can be used to strengthen the efforts of states and advocates to advance the independence, productivity and full citizenship of people with disabilities.”

Using the interactive website, users can:

·      Compare state & national data. 

·      View state scorecards. 

·      Interact with the ranking map. 

·      See highlights of the 2013 report, the top and bottom 10 states, most improved states and those with biggest drops, and facts about the best performing states. 

·      Learn how to use the report to advocate for areas needing improvement in states, and promote achievements that maintain high quality outcomes, like eliminating waiting lists and closing large institutions. 

·      View in-depth information about each of the states feature in the case studies: Massachusetts, Kansas and Washington State. 

·      Users can pull individual state outcomes and measures, track each state’s performance over time, and compare states among one another and to the U.S. average. The Case for Inclusion data, tables and graphs are exportable and printable as needed for personal and professional use.

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About United Cerebral Palsy

 

United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.