Money Follows the Person: A 2011 Survey of Transitions, Services and Costs

Most states receive federal funding to transition persons on Medicaid living in institutions to community living (often referred to as Money Follows the Person Demonstration). This report, Money Follows the Person: A 2011 Survey of Transitions, Services and Costs, from the Kaiser Family Foundation looks at the current status of the program including current enrollment, and per capita spending.

DC RESEARCH & DEVELOPMENT LEADER CHOSEN TO HEAD UCP’S TECHNOLOGY EFFORTS

FOR IMMEDIATE RELEASE

CONTACTS:
Lauren Cozzi, 202-973-7114, lcozzi@ucp.org
Alicia Kubert Smith, 202-973-7168, akubertsmith@ucp.org

DC RESEARCH & DEVELOPMENT LEADER CHOSEN TO HEAD UCP’S TECHNOLOGY EFFORTS

Irlandez to launch Life Labs, Strengthen Life Without Limits Initiative

Washington, DC (December 16, 2011) – United Cerebral Palsy (UCP), an international service provider and advocate for children and adults with a spectrum of disabilities, has appointed Marc Irlandez, a technologist with more than a decade’s long track-record of successfully producing innovative technology solutions for complex problems, as its new Director of Technology. Irlandez starts with UCP on December 21, 2011.

Irlandez has served in District of Columbia’s Office of the Chief Technology Officer since 2008, during which he held positions as head of OCTO Labs and Director of Research and Development. During his tenure, he was accountable for initiatives supporting innovation with new technologies within all DC government agencies. At UCP, he will lead a team implementing Life Labs, UCP’s Research and Development Program designed to harness technology to create innovative solutions for people with disabilities, and will implement a technology plan to serve UCP’s 84 affiliates while helping to implement technology solutions for UCP’s public education and outreach and Life Without Limits initiatives.

“We are thrilled to welcome Marc to the UCP family at this important time in the organization’s history,” said Stephen Bennett, former President and Chief Executive Officer of UCP. “Marc brings a wealth of experience in using technology to help people connect with one another, which is core to the mission of UCP.”

Prior to serving in city government, Irlandez was a Senior Developer with Zenoss, an Annapolis, Md.-based technology firm; a Consulting Engineer with Opsware/HP in New York City; and a Computer Scientist and Project Leader at the Naval Research Laboratory in Washington, DC. He has also head technology leadership positions at AOL/Time Warner, wellspent.org, the Economist Magazine/CFO.com, Learning In Progress, the Sapient Corporation and Magnet Interactive. He holds a bachelor’s degree in computer science from The George Washington University.

“I am excited to join UCP and to be entrusted with its technology vision,” Irlandez said. “I believe in UCP’s mission and that Life Labs will become a model of how technology can transform lives in meaningful ways.”

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

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Providing a Primary Care Medical Home for Children and Youth With Cerebral Palsy

The American Academy of Pediatrics released a new clinical report, “Providing a Primary Care Medical Home for Children and Youth With Cerebral Palsy”.

The report reviews the aspects of care specific to cerebral palsy that a medical home should provide beyond the routine health care needed by all children such as diagnosis, planning for interventions, authorizing treatments, and follow-up, and optimizing health and well-being for children with cerebral palsy and their families.

Disability Provider and Advocate Unveils New Public Education & Outreach Initiative, Celebrates Opening of New National Headquarters in DC

FOR IMMEDIATE RELEASE

CONTACTS:
Lauren Cozzi: 202-973-7114 (direct), LCozzi@ucp.org
Alicia Kubert Smith: 202-973-7168 (direct), AKubertSmith@ucp.org

Disability Provider and Advocate Unveils New Public Education & Outreach Initiative, Celebrates Opening of New National Headquarters in DC

Luncheon Forum Explores Issues of Transition

Washington, DC (Nov. 30, 2011) – United Cerebral Palsy (UCP), an international service provider and advocate for children and adults with a spectrum of disabilities, unveiled its new Public Education & Outreach initiative and celebrated the opening of a new national headquarters in Washington, DCwith a luncheon forum exploring issues of transition for people with disabilities.

During the Luncheon Forum, co-hosted with Disability Power & Pride, a distinguished panel of speakers discussed key transition issues in the lives of people with disabilities, including the transition from early childhood to teen years, post-secondary education, employment, independent living and long-term care needs.

Watch the recorded video clips of the panel presentation from featured speakers:

  • Richard Donovan, CEO and principal owner of Integrated Process Solutions LLC (IPS)
  • Connie Garner, Policy Director in the Government Strategies Practice Group, and Executive Director for Advance CLASS, Inc.
  • Seth Harris, Deputy Secretary of Labor

 

“UCP affiliates provide key support for families and individuals across the globe during moments of transition in life,” said Stephen Bennett, former UCP President & Chief Executive Officer. “We are excited to add significant new national information and networking resources for people with disabilities through our new Public Education & Outreach initiatives and hope that these tools spark a national dialogue about ways we can all help create a life without limits for people with disabilities.”

Resources:

 

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

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Disability Groups Respond to Supercommittee Failure

FOR IMMEDIATE RELEASE

UCP Contacts:
Lauren Cozzi, 202-973-7114, 
Alicia Kubert Smith, 202-973-7168, 

AAPD Contacts:
Lara Schwartz, 202-521-4309, lschwartz@aapd.com
Frankie Mastrangelo, 202-521-4308, fmastrangelo@aapd.com

Disability Groups Respond to Supercommittee Failure

Joint Statement by Mark Perriello of the American Association of People with Disabilities and Stephen Bennett, United Cerebral Palsy

Washington, D.C. (November 21, 2011) — “Since the Supercommittee was formed, Americans from all walks of life have spoken loud and clear: we support tangible, responsible solutions that preserve opportunity. The budget debate has moved from the Supercommittee to party leaders and back again, and has now apparently ground to a halt. Rigid adherence to ideology is again coming at the expense of every-day Americans who need their representatives to get something done. Instead of solutions, we’re left with uncertainty about the future. Today, real people who are already making do with very little are left to wonder if deficit reduction will result in opportunity reduction. Today’s news has not changed the fact that we need to protect our fiscal future and our national security while at the same time preserving essential lifelines for people with disabilities.”

Stephen Bennett is the former President and CEO of United Cerebral Palsy, and Mark Perriello is the President and CEO of the American Association of People with Disabilities.

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

About the American Association of People with Disabilities (AAPD)
The American Association of People with Disabilities is the nation’s largest cross-disability organization. We promote equal opportunity, economic power, independent living, and political participation for people with disabilities. Our members, including people with disabilities and our family, friends, and supporters, represent a powerful force for change.  Visit www.AAPD.com for more information.

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Disability Provider and Advocate Unveils and Launches New Public Education & Outreach Initiative, Celebrates Opening of New National Headquarters in DC with Luncheon Forum Exploring Issues of Transition

MEDIA ADVISORY: Request for media coverage

CONTACTS:
Lauren Cozzi: 202-973-7114 (direct), 203-858-5292 (cell), Alicia Kubert Smith: 202-973-7168 (direct),

Disability Provider and Advocate Unveils and Launches
New Public Education & Outreach Initiative,
Celebrates Opening of New National Headquarters in DC with
Luncheon Forum Exploring Issues of Transition

New UCP Public Education & Outreach initiative features
four public education campaigns for people with disabilities

Washington, DC (Nov. 9, 2011) – United Cerebral Palsy (UCP), an international service provider and advocate for children and adults with a spectrum of disabilities, will host a Luncheon Forum exploring issues of transition, with co-host Disability Power & Pride, to unveil and launch UCP’s new Public Education & Outreach initiative and celebrate the opening of UCP’s new national headquarters, on Monday, November 14. former UCP President & CEO, Stephen Bennett, will be available for interview.

A distinguished panel of speakers will discuss key transition issues, such as post-secondary education, employment, independent living and long-term care needs. The event is open to the public with RSVP, lunch will be provided, and attendees will have the chance to see UCP’s new offices. Complete information is available at www.ucp.org/luncheonforum.

WHO:                        UCP and Disability Power & Pride

WHAT:                      Luncheon Forum exploring issues of transition in the lives
of people with disabilities

WHEN:                      Monday, November 14, 11:30 a.m. – 1:00 p.m.
                                   Panel begins at 12:00 noon

WHERE:                   UCP’s NEW offices
1825 K St. NW, Suite 600
Washington, DC 20006

PRESS RSVP:         To attend, cover or schedule an interview: ,

GENERAL RSVP:     Open to public with RSVP to rsvp@ucp.org (space is limited) 

For more information about UCP’s new Public Education & Outreach initiative, visit ucp.org/what-we-do/publiced/.

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

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Representatives from Interfaith Religious Community & Disability Organizations Host Web Chat Discussing Importance of Medicaid for People with Disabilities

Media Advisory

Contacts:
UCP: Lauren Cozzi, 202-973-7114, & Alicia Kubert Smith, 202-973-7168, AAPD: Lara Schwartz, 202-521-4309, lschwartz@aapd.com

Representatives from Interfaith Religious Community & Disability Organizations Host Web Chat Discussing Importance of Medicaid for People with Disabilities

Washington, DC (November 8, 2011) – the American Association of People with Disabilities (AAPD), United Cerebral Palsy (UCP), and the Interfaith Disability Advocacy Coalition (IDAC) – a diverse, nonpartisan coalition of religious and religiously affiliated organizations whose core spiritual values affirm the rights and dignity of people with disabilities – will host a public web chat to discuss current deficit reduction strategies while representing a broad cross-section of the nation’s various faith traditions on Thursday, November 10 at 1:30 p.m. EST.

As the US Congress Joint Select Committee on Deficit Reduction (the “Supercommittee”) continues to deliberate and craft proposals concerning the federal budget, it is important that the voices of the faith community be a vibrant part of the national conversation. Americans of many faiths support policies and programs that promote independence and dignity for people with disabilities. Medicaid is a tool that enables millions of Americans with disabilities to enjoy these freedoms, including contributing to their communities, families and congregations.

Participating IDAC members will share their unique perspectives about why Medicaid must be preserved for people with disabilities. The public can engage in the web chat by submitting questions to interfaithchat@aapd.com and logging in to engage in the conversation.

 WHO:            Hosted by AAPD, UCP & IDAC. Participants include Mark Perriello,
                        AAPD President and CEO; Khizer Husain of American Muslim Health
                        Professionals; and the following IDAC members:

  • Meg Cooch, Director of Policy and Advocacy, Lutheran Services in America Disability Network, “When thinking about deficit reduction and balancing the budget, we must apply our faith values to possible proposals. Medicaid allows people with disabilities the opportunity to be full participants in our society by providing critical services and job supports.”
  • David Feinman, Senior Legislative Associate, the Jewish Federations of North America, “Considering the challenges the ‘Supercommittee’ and the rest of the Congress face coming to a consensus on most issues, it is critical that they hear from people who want to have a constructive conversation.” 
  • Maggie Mitchell Siddiqi, Islamic Society of North America, “In Islam, we are instructed to protect the dignity of every human being and provide help for those in need. As a Muslim, I believe in the importance of preserving safety net programs like Medicaid, which help people maintain their dignity and self-sufficiency.”
  • Khizer Husain, Member, Task Force on Health Affordability, American Muslim Health Professionals, “My faith compels me to advocate for the neediest, particularly if it involves sacrifice.”


WHAT:         
Web Chat: Protecting Medicaid Across Faith Lines for People                
                       with Disabilities

WHEN:         Thursday, November 10, 2011 at 1:30 p.m. EST

WHERE:       http://bit.ly/smog5m

EMAIL:         Anyone may submit questions to interfaithchat@aapd.com

To learn more about AAPD and UCP’s joint efforts to ensure quality healthcare and access to care, please visit America’s Supercommittee at www.ucp.org/public-policy/america-s-super-committee.

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visitwww.ucp.org.

About the American Association of People with Disabilities (AAPD)
The American Association of People with Disabilities is the nation’s largest cross-disability organization. We promote equal opportunity, economic power, independent living, and political participation for people with disabilities. Our members, including people with disabilities and our family, friends, and supporters, represent a powerful force for change. Visit www.AAPD.com for more information. 

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How Well Does Your State Support Early Intervention?

Early Intervention programs help children ages 0-3 with developmental delays or disabilities. Intervention is vital during this very early time because this is a crucial time of development where a child learns and develops at the fastest rate. Every state is mandated by the federal government to provide services but how well does your state do? 

Easter Seals has just published a report, Our Nation’s Children At Risk: A State-by-State Report on Early Intervention that provides a state by state snapshot of early intervention services. The full report is available online. You can also read more about early intervention on UCP’s My Child Without Limits Website.

UCP Horrified Over Video Depicting Beating of 16-Year-Old with Cerebral Palsy

FOR IMMEDIATE RELEASE

CONTACTS:
Lauren Cozzi: 202-973-7114 (direct), Alicia Kubert Smith: 202-973-7168 (direct),        

UCP Horrified Over Video Depicting Beating of 16-Year-Old with Cerebral Palsy

Washington, DC (Nov. 4, 2011) – United Cerebral Palsy (UCP), an international service provider and advocate for children and adults with a spectrum of disabilities, watched with great horror the video depicting a then-16-year-old with cerebral palsy being beaten with a belt by her father. While we don’t know all the facts of the case, there is no justification for the extreme violence depicted on this video. Too often children with disabilities encounter abuse at the hands of those who are supposed to care for them. UCP will watch with great interest the unfolding of this case in hopes that a clear message is sent that inflicting this kind of physical harm is never justified.

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

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Disability Etiquette for Reporters: www.ucp.org/media/tools-for-reporters

Media Coverage: