United Cerebral Palsy, AACPDM Welcome Global Experts to Discuss Changing Landscape for Cerebral Palsy, Developmental Disabilities

Organizations Use Far-Reaching Discussion to Inaugurate New Partnership 
During AACPDM 64th Annual Meeting in Washington, DC

 

Washington, DC – United Cerebral Palsy (UCP), a leading service provider and advocate for children and adults with an array of disabilities, and the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) have invited leading experts from around the world to discuss the future of cerebral palsy (CP) and other developmental disabilities at Shared Learning, Global Transformation: The Changing Landscape for Cerebral Palsy & Other Developmental Disabilities, on Wednesday, September 22, 6:30 – 9:30 p.m. ET at the Newseum, 555 Pennsylvania Avenue, NW, Washington, DC.

The event inaugurates a partnership between the organizations at AACPDM’s 64th Annual Meeting, featuring a Panel Discussion/Presentation made possible through the generosity of the Cerebral Palsy International Research Foundation (CPIRF). During this presentation, which will also stream LIVE on UCP’s website, leading researchers, medical experts, technologists and futurists will explore advances in the field that are changing the way that people with disabilities live their lives.

This new partnership links one of the country’s largest health care nonprofits – UCP – with the leading coalition of physicians and researchers in the field of CP and developmental medicine – AACPDM. While there have been major advances in understanding CP and other development disabilities over the last 150 years, an explosion in research, patient to patient networks and advances in technology, has radically altered the landscape, resulting in a paradigm shift creating a life without limits for people with disabilities. 

“We are excited to mark a new partnership with AACPDM to encourage investments in research and treatment in such a public and special way,” said Stephen Bennett, United Cerebral Palsy President and Chief Executive Officer. “At the heart of both of our organizations is the desire to create a life without limits for people with disabilities. This panel — exploring advances in medicine, research, treatment and the creation of dynamic new networks — gives us a chance to demonstrate the power of this partnership for people with disabilities. We are honored to be able to help AACPDM kick off its 64th Annual Meeting in such a significant way.” 

The panel presentation will be followed by a Governance Reception with leaders from both groups.

 

WHO: United Cerebral Palsy (UCP) in partnership with the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM)

WHAT: Panel discussion/Presentation to discuss the changing landscape for CP and other developmental disabilities, exploring how advancements in medicine, technology and interconnected networks have radically transformed the lives of people with disabilities, enabling them to live a life without limits

The presentation will be followed by a Governance Reception hosted by Shionogi Pharma Inc.
Panelists include:

  • Richard Stevenson, MD, Professor of Pediatrics at the University of Virginia School of Medicine in the Division of Developmental Pediatrics
  • Linnea Burman, Director of Drug Delivery Marketing, Medtronic
  • Robert Armstrong, MD, Founding Dean of the College of Medicine – East Africa
  • Janice Brunstrom-Hernandez, MD, Director of the Pediatric Neurology, Cerebral Palsy Center at St. Louis Children’s Hospital
  • Greg Elin, Chief Data Officer, Federal Communications Commission

 LIVE video of the Panel discussion/Presentation will stream from the UCP website:

 http://www.ucp.org/ucp_generaldoc.cfm/1/9/9/9-9/10094.

Panelist bios and headshots available upon request

WHEN: Wednesday, September 22, 2010, 6:30 – 9:30 p.m. ET
• 6:30 p.m. – Panel Discussion/Presentation 
• 7:45 p.m. – Governance Reception 

WHERE: Newseum, 555 Pennsylvania Ave., N.W., Washington, DC 20001

ATTIRE: Business attire

INVITE: This event is by invitation only

MEDIA RSVP:
Please RSVP to attend and cover:
Lauren Cozzi: 202-973-7114 (direct), LCozzi@ucp.org

THANK YOU
:
Shared Learning, Global Transformation: The Changing Landscape for Cerebral Palsy & Other Developmental Disabilities is generously underwritten by Shionogi Pharma Inc. The Panel Discussion/Presentation is made possible with support by the Cerebral Palsy International Research Foundation (CPIRF).

About United Cerebral Palsy:
Founded more than 60 years ago by parents of children with cerebral palsy, today United Cerebral Palsy (UCP) is a leading service provider and advocate for children and adults with disabilities. The UCP mission is to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network. This includes approximately 100 local service providers reaching more than 176,000 individuals daily in the U.S., Canada, Scotland and Australia. The national office in Washington DC supports the affiliate network; advocates on behalf of individuals with disabilities; advances federal disability public policy (Disability Policy Collaboration); provides information and referral; and develops forward-thinking initiatives and programs like Life Without Limits and My Child Without Limits.

About American Academy for Cerebral Palsy and Developmental Medicine
The Academy was founded in 1947 to provide multidisciplinary scientific education for health professionals and promote excellence in research and services for the benefit of people with cerebral palsy and childhood-onset disabilities. The diversity of the six founding members (an orthopedic surgeon, a neurologist, two pediatricians, a neurosurgeon and a physiatrist) signified the necessity for an interchange of ideas and experiences among all of those who provide care for patients with cerebral palsy. The foresight of our founders is reflected by the Academy’s volunteer leadership and increasing membership of specialists in these and other disciplines. For more information, please visit www.aacpdm.org.

About Shionogi Pharma Inc.
Shionogi Pharma Inc. is a US-based company of Shionogi & Co., Ltd. Headquartered in Osaka, Japan, Shionogi & Co., Ltd. is a major research-driven pharmaceutical company dedicated to placing the highest value on patients. Shionogi’s Research and Development currently targets three therapeutic areas: Infectious Diseases, Pain, and Metabolic Syndrome. The Company has provided such innovative medicines as Crestor and Doripenem, which have been successfully delivered to millions of patients. In addition, Shionogi is engaged in new research areas such as allergy and cancer. Contributing to the health of patients around the world through development in these therapeutic areas is Shionogi’s primary goal. For more details, please visit www.shionogi.co.jp. For more information on Shionogi Pharma Inc., headquartered in Florham Park, NJ, please visit www.shionogi-inc.com.

###

United Cerebral Palsy Mourns Passing of John W. Kluge

Philanthropist’s generosity toward disabilities research helped transform lives

Washington, DC (September 9, 2010) – United Cerebral Palsy (UCP), a leading service provider and advocate for children and adults with disabilities, mourns the loss of philanthropist John W. Kluge, 95, who passed away on Tuesday, September 9 at his home near Charlottesville, Va. His generosity extended to UCP and its research efforts toward developmental disabilities. 

“Mr. Kluge played a significant role in advancing research of cerebral palsy and other developmental disabilities,” said Stephen Bennett, UCP’s President & Chief Executive Officer. “While his recent philanthropy was focused on education and the arts, he remains one of UCP’s heroes for his deep concern and generosity for advances in health care for people with disabilities.” 

Mr. Kluge played a pivotal leadership role in the United Cerebral Palsy Research and Educational Foundation, now the Cerebral Palsy International Research Foundation (CPIRF). Beginning in 1972, he served as vice president and later president and chair of the UCP Research and Education Foundation. His gift of $2.5 million to the foundation was a pivotal moment in its history, and he quietly made other significant gifts since leaving his leadership post with the research foundation. 

James C. Stearns, President of CPIRF’s Board of Directors, noted that Mr. Kluge was among an increasingly rare group of philanthropists who understood that medical advances often only come after significant study and years of work. “John Kluge understood that serving others wasn’t always a ‘quick fix.’ His generosity and deep understanding that medical research would one day transform the lives of people with disabilities continues to serve as an example for our work today.” 

About United Cerebral Palsy
Founded more than 60 years ago by parents of children with cerebral palsy, today United Cerebral Palsy (UCP) is a leading service provider and advocate for children and adults with disabilities. The UCP mission is to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network. This includes approximately 100 local service providers reaching more than 176,000 individuals daily in the U.S., Canada, Scotland and Australia. The national office in Washington DC supports the affiliate network; advocates on behalf of individuals with disabilities; advances federal disability public policy (Disability Policy Collaboration); provides information and referral; and develops forward-thinking initiatives and programs like Life Without Limits and My Child Without Limits

MEDIA CONTACT: 
Lauren Cozzi
(202) 973-7114 (direct)
LCozzi@ucp.org

Join The Madison Hotel Sept. 9 to Support United Cerebral Palsy During Latest The Real Housewives of DC Episode

PLEASE JOIN THE MADISON HOTEL IN SUPPORT OF UNITED CEREBRAL PALSY THE EVENING OF THURSDAY, SEPTEMBER 9TH DURING LATEST EPISODE OF THE REAL HOUSEWIVES OF DC

 

WHO: Friends and supporters of United Cerebral Palsy (UCP), and fans of Bravo TV’s newest hit, The Real Housewives of DC

WHAT: Join the Palette Restaurant and Lounge at The Madison, A Loews Hotel to Support UCP while watching the latest episode of Bravo TV’s newest hit, The Real Housewives of DC, featuring The Madison 

Enjoy extended happy hour pricing & fun martinis:

  • The State Dinner: house infused basil vodka, triple sec, carrot juice, mixed spices
  • Who’s Who in DC: pomegranate, champagne, flower liquor
  • Let’s Gossip: Baileys, Godiva dark chocolate, milk foam, grenadine, cherry
  • Martinis $8
  • Select Wines $6
  • Domestic Beer $5

WHEN: Thursday evening, September 9th: 7:00 – 11:00 p.m.

WHERE: Palette Restaurant and Lounge at The Madison, A Loews Hotel
1177 15th Street, NW, Washington, DC 20005
Phone: (202) 862-1600

COST: 10% of Palette’s Proceeds from 7:00 – 11:00 p.m. will be donated to UCP

INVITE/RSVP: Open to the general public; no RSVP necessary

MEDIA: Should media like to cover, please contact Lauren Cozzi

 

About United Cerebral Palsy:
Founded more than 60 years ago by parents of children with cerebral palsy, today United Cerebral Palsy (UCP) is a leading service provider and advocate for children and adults with disabilities. The UCP mission is to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network. This includes approximately 100 local service providers reaching more than 176,000 individuals daily in the U.S., Canada, Scotland and Australia. The national office in Washington DC supports the affiliate network; advocates on behalf of individuals with disabilities; advances federal disability public policy (Disability Policy Collaboration); provides information and referral; and develops forward-thinking initiatives and programs like Life Without Limits and My Child Without Limits.

###